Beth lives with polycystic kidney disease (PKD) Feature

In 1996, Beth was diagnosed with polycystic kidney disease (PKD), which causes cysts to grow inside the kidneys. Over time, this genetic disorder affects the organs’ function, causes chronic kidney disease and leads to kidney failure. Beth’s evolving response to living with PKD…
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If you’re looking for something good to watch on Netflix you’re in luck! These 12 health stories are available to watch right now. If Netflix is your go-to whenever you need to watch something interesting, informative, or just something to distract you then…
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Dyspareunia: What Women Think About Painful Sex After Menopause

Comedic author Ellen Dolgen, whose popular blog covers all facets of menopause, doesn’t care for the term dyspareunia. “That’s the best the medical community could do?” she says. “I call it dry vagina.” “During your menopausal journey, you may find that one day,…
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Creature Comforts: Therapy Animals Who Work to Help Humans Heal

When Smiley the Blind Therapy Dog recently passed away at 15 years old after a long fight with cancer, thousands of people posted messages of grief across social media. The passing of Smiley was quite tough for people to take in, but knowing…
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Patience and Perseverance: Living for Decades with Multiple Sclerosis

Multiple Sclerosis is a condition of the central nervous system that interferes with messages between the brain and the body. The National Multiple Sclerosis Society estimates that at least 400,000 in the U.S. have MS. For unknown reasons, people who live in northern…
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Dissociative Identity Disorder

Dissociative Identity Disorder (DID) was once called “multiple personality disorder.” It’s a serious, rare condition in which a person’s identity is fragmented into distinct personalities. This post about life with DID was submitted by a Health Stories Project community member. Click here to…
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Living with pulmonary arterial hypertension

Meet Kathryn Kathryn has been living with Pulmonary Arterial Hypertension (PAH) since 2006. Though it’s a serious condition, she doesn’t let it slow her down – not even on the tennis court! We asked Kathryn to share her story with our app. Here’s what she…
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Living with HIV: "A Positive Diagnosis Can Lead to Positive Living"

Meet Eric Eric Grant is from Atlanta, Georgia and has been HIV+ since 2014. He wants to help others live out loud and believes that living positive can be positive living. We asked Eric to share his story with our app. Check it…
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About 7.5 million Americans suffer from psoriasis (the “p” is silent). A chronic inflammatory disease of the immune system, it primarily affects the skin and joints, but can also affect the fingernails, toenails, and even soft tissues like inside of the mouth. Inflammation…
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IgA Nephropathy is not a common condition. About 1 in 100,000 people in the United States develops this serious kidney condition each year. For unknown reasons, men get it at about twice as often as women, and while it is sometimes found during…
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25 Insights From People Living with Schizophrenia

For people with schizophrenia, diagnosis can be a relief — all those symptoms finally start to make sense – but also a devastating and life-altering moment. Schizophrenia is a chronic and severe mental disorder characterized by thoughts and experiences that are out of…
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From Ulcerative Colitis to Colon Cancer: How Renee Holt Dealt with a Dual Diagnosis

Ulcerative colitis is a common, chronic inflammatory disease that results in long-term inflammation and ulcers in the large intestine. It can cause stomach discomfort and rapid emptying of the colon. Even though ulcerative colitis has no known cure, through medication and a disciplined…
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What a Pain – How the “Opioid Crisis” Impacts a Migraine Sufferer

It might start with a throb behind your eye. Or maybe you see an aura; a bright spot or some other change in your vision. Perhaps you just get nauseated suddenly. Sometimes bright lights or sounds become all-of-a-sudden intolerable. Migraine headaches are experienced…
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Not a Laughing (or Crying) Matter: The Impact of Pseudobulbar Affect

Share Your Experiences with Pseudobulbar Affect to See if You Qualify for a $50 Honorarium Insult to injury. For many people, this saying describes what it feels like to be diagnosed with Pseudobulbar Affect (PBA). PBA is a neurologic condition that appears in…
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5 Self Care Tips for People Living with Chronic Illness

When it comes to your health and happiness, a take-charge attitude can make a huge difference. There’s nothing selfish about self-care, which simply means actively taking care of you, whether it’s following a nutritious diet, practicing meditation, or indulging in a few hours…
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We all get sleepy during the day sometimes. A long meeting might lead to heavy eyelids, or a bus ride can bring on a bad case of the yawns. But the neurologic condition called Narcolepsy, which affects about 1 in 2,000 people, leads…
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9 Artists on Instagram Who Are Living With Chronic Illness

We deliver new health stories each week! –> Many people who live with a chronic illness find that there are few genuine distractions from the pain and inconvenience that come with being sick. This might be why so many patients turn to art…
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6 Things You Should Know About Life with Hereditary Angioedema (HAE)

We deliver new health stories each week! –>   Imagine visiting Yankee Stadium and being selected and singled out of the entire crowd. Being born with Hereditary angioedema (or HAE) is a similarly rare event. It’s so rare, in fact, that many doctors aren’t…
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 Just Diagnosed with Melanoma? These 24 Messages Are for You

Catching melanoma early can save your life, but diagnosis is often a tricky process. After initial discovery of a suspicious mole there is a biopsy (which involves skin tissue being removed and viewed under a microscope). Followed by a check of the lymph…
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9 Podcasts about Health Worth Checking Out

I’m a podcast geek. For me, the cool thing about podcasts is that you can hear interesting stories, and learn something new, all while doing something totally mundane. I can learn about coffee while I’m grocery shopping, meditation while I’m doing the dishes…
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Netflix & Heal - From cancer to congestive heart failure, these 8 Netflix documentaries tell true stories of incredible people fighting illness.

When it comes to recovering from an illness or staying in because of something chronic, Netflix documentaries can be a lifesaver. Not only are they a welcome distraction, but they can also help us find more understanding and compassion towards those with experiences…
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