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Community Insights Are Valuable Our site will never be a place to come and get every fact or the latest piece of news about any health condition. However, we will continue to share results from surveys you generously respond to. Last year, we…
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“So, I have this weird thing…” That’s how Jaime starts explaining her rare health condition to new people. She then goes on to tell them, “It starts with bumps in the armpit that hurt immensely and swell up like cysts. Then they burst…
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Healthy Grilling IDeas

Memorial Day is a time many families use to visit memorials and to honor those who have died in military service. It’s also a time for people to get together and celebrate the impending summer with the time-honored tradition of grilling in the back…
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When it comes to your health, two wheels are better than four! There are countless great reasons to get on a bike and start pedaling for your health. To name a few: Biking can be easier on your ankles, knees and feet than…
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12 Messages For People Living With Bipolar Disorder

During the month of May NAMI, Mental Health America, and similar organizations across America team up to bring awareness to mental health illnesses such as depression, schizophrenia, and bipolar disorder. While mental health issues are important to discuss year round, during this month…
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In the spring of 2011, William Gould was “running hard” – working 60 plus hours a week in healthcare administration while also pursuing a master’s degree. Although he ate poorly, rarely exercised, and was often short on sleep, William didn’t worry too much…
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Stress Awareness Week

We all get stressed out from time to time – long hours at work, challenges in our personal lives, health problems, even traffic jams can send blood pressures rising. Stress is unavoidable. Luckily, there are countless tools and resources available to help reduce…
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When Alex Stone left home to attend college just over a decade ago, the freshman arrived on campus with an unusually furry roommate. Stone, now 30, has cerebral palsy, a disease that affects his movement and balance. He knew he’d need assistance living…
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When Mark Lyon was diagnosed with Parkinson’s disease three years ago, he started participating in new activities. He began paddle boarding off the coast of Del Mar, CA, at dawn to increase strength and agility. He began playing music in an effort to…
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Brain Awareness Week

What weighs roughly three pounds, has more wrinkles than a Shar Pei, contains invisible cells that stack up to 5,000 miles, and fits snugly into the space between your ears? A simple brainteaser, perhaps, but the human brain is nowhere near simple. It…
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Lyme Disease Bites

Transmitted by tick bites, Lyme disease is a bacterial infection that affects hundreds of thousands of people in the United States each year. The actual number is difficult to determine because Lyme symptoms mimic many other diseases, sometimes leading to misdiagnosis. We wanted…
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Life with age-related macular degeneration

The day Patsy Schuchardt noticed that every car in the parking lot had a flat tire, she knew something was wrong. Not with the tires – they were actually fine – but with her sight. A few months earlier, Patsy had noticed her…
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Pseudobulbar Affect: Struggling with Emotional Control

Share Your Experiences with Pseudobulbar Affect to See if You Qualify for a $50 Honorarium Laughing and crying. They’re two of our most personally revealing behaviors. Why? Because they let people around us know when we feel joy and when we feel pain….
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Back in the Driver’s Seat After Brain Injury Carol Kolk is an avid autocross racer. She’s also the survivor of a traumatic brain injury (TBI). Think the two are related? Sort of – but the accident that led to Carol’s brain injury happened…
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Bitter Pills: A Game About Chronic Illness

Game nights can be a great way to bring people together. It turns out, they’re also a great way to have difficult conversations about chronic illness, says Adrienne Ciskey, a Chicago-based artist who created the board game Bitter Pills to help others understand…
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Bipolar Disorder Bingo

We’ve all done it. You know that someone is facing a difficult situation so you say something to try to help. It comes from a good place. You genuinely want things to get better for them. The problem is that what we say…
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Urea Cycle Disorder

Lauren Morales showed no signs of a Urea Cycle disorder (UCD) until she was four years old. She and her family were at her grandmother’s house around Christmas, when her mother noticed she wasn’t acting like her usual self. Normally filled with boundless…
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How do you cope with an immensely painful medical condition many doctors don’t even know exists? Long before she knew it, that was the problem facing Maria Martinez. Early in 2008, Maria and her son were raking in the yard when she noticed…
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For many diagnosed with Celiac Disease, the initial emotional response is joy that doctors have identified the source of illness, and a renewed hope that a healthy life is once again possible. Soon after comes a realization that many of one’s favorite foods…
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The last year has been a good one for Steven Koston. Now 44, the Wisconsin native works in sales and loves to get out on the golf course when he’s not spending time with his wife, Barbara, and their two children. If you…
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January, 1980. Things were looking good for Mark Tallman. He had just been promoted at the oil company he worked for to run one of its warehouses near Salem, Ore. As he was conducting the inventory one morning, he dropped his pen. Paying…
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