Feature

At Health Stories Project, empowering patients and caregivers to share their authentic health journeys is at the heart of our business. Only from understanding such a journey – which is different for every person we encounter – can we authoritatively recommend strategies to…
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Britany Quiroz, MS Patient Advocate sitting on steps holding her cane Feature

Performer and multiple sclerosis advocate Brittany Quiroz is keeping it real—and empowering others. If all the world is a stage, as William Shakespeare’s Jacques asserted around 400 years ago, most of us are metaphorical bit players whose challenges and dreams don’t factor into…
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multiple conditions self injection Feature

Many people living with multiple illnesses don’t just manage symptoms, they also adhere to a medication schedule and may need to repeatedly adjust their overall regimen (with their doctors’ input) due to how medicines interact. Staying on top of treatments alone can have…
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Feature

Rosemary’s health concerns date back to 1984, when she was diagnosed with lupus and interstitial lung disease. In the decades since, she has been diagnosed with several other conditions, making each year more complex and challenging than the last. Looking back on her…
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Imagine your last healthcare experience – whether you were at the doctor’s office or hospital, as a patient, visitor, or caretaker. Whatever the reason, it probably wasn’t fun. Healthcare experiences can be simultaneously exhausting, stressful, and boring. For many living with illness, distraction,…
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We deliver new health stories each week! –> Osteoporosis is a disease that happens when the body loses too much bone mass, can’t produce enough new bone tissue, or sometimes both of these factors. The bones of people with osteoporosis become weak and…
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Vicki Woodward hates those rheumatoid arthritis advertisements. You know, the ones with the creepy music serenading a spry woman in her early 50s who effortlessly lives an active lifestyle… “They always have some RA person who is happy, thin, and gorgeous with a…
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It’s easier to talk about physical scars than emotional ones, but life with a chronic illness like Hidradenitis supporativa (HS) isn’t just about physical pain. Hidradenitis supporativa can leave unseen wounds that are just as serious and bothersome as their physical counterparts. In fact,…
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Being diagnosed with a new disease can be incredibly scary. Dozens of questions run through your head, but you might not be ready to ask them because you are still processing how your life could be very different from now on. Talking to…
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At first, a chronic illness diagnosis can be overwhelming. The questions stack up (What doctors should I see? Which sources of information are the best? What medication is right? Do i need to learn more about the medications available to me?) and there…
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Chronically Ill? 8 Ways to Show a Bad Day Who’s Boss

When you live with a chronic illness, bad days are more than just a case of the Mondays, or your bagel landing butter down. On the days that really suck there is little to relieve the pain, fatigue, and impossible barriers that start…
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Have you been affected by a chronic health condition? Your story can make a difference! Sign up to share your experiences with Health Stories Project. For those living with chronic illness the holidays can be especially harrowing. Special meals, extra outings, and interactions with people who…
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It’s easy to romanticize the cold. There is something about the purity of snow, snuggling by a warm fire, or staying indoors to listen to the rain that can elevate the spirit even during the darkest of days. However, for some of those…
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6 Messages of Thanks from People Living with Chronic Health Conditions

“I couldn’t do this alone.” Without context this statement might sound a little self-defeating, but it’s true, and it touches something deep and very real about our humanity. Humans are fragile, breakable things and each and every one of us needs to rely…
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Fibromyalgia is a very common, chronic condition that causes widespread muscle and joint pain, tenderness, fatigue, depression, as well as many other symptoms. It’s often accompanied by a condition that sufferers refer to as “fibro fog,” a constant state of fatigue that results…
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When most people think a negative “what if” thought, it passes quickly without leaving a lasting impression. But for people with Obsessive-Compulsive Disorder (OCD), that thought can manifest into an obsession and they’re often left living in constant fear that something terrible will…
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We deliver new health stories each week! –> “In an instant my life changed forever. A simple fall. I just didn’t realize I was in for the fight of my life.” – Melissa, patient living with CRPS Complex regional pain syndrome (or CRPS)…
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A Day in the Life of a Type 1 Diabetic Auditor For an auditor in a public accounting firm during busy season, the average day follows a tough routine where fast food beats food prep, late nights outlast rest and exercise never makes…
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You know how you feel right after a really long flight? Aching stiffness, pain, and exhaustion from being crammed into a tiny seat where you can’t sleep comfortably. But worse, much worse. Now imagine that’s how you feel just about every day and…
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Yoga for Every Body

Yoga is generally considered one of the healthiest things you can do for your body, and research is beginning to affirm what many believe to be true. In fact, regular yoga practice has been scientifically linked to reduced heart rate, lower blood pressure,…
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Cheryl and Maggie

Sitting in the doctor’s office and hearing the word “cancer” is a situation that many people dread. It’s hard to know how you’ll cope with the initial shock, let alone the months of learning about the diagnosis and going through treatment. When Cheryl…
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Pokemon Go

Pokemon is a world that has captivated millions across the globe for many years and has been constantly adapted to fit within other popular games. There have been mash-ups between games such as Minecraft and Pokemon known as Pixelmon and not to mention…
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PTSD Resources

Imagine never feeling safe. Simply closing your eyes can cause you to relive the worst moments of your life in vivid detail. This is how some people have described living with Post Traumatic Stress Disorder (PTSD). According to U.S. Department of Federal Affairs,…
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Grown Up Thoughts on Juvenile Arthritis

Kirsten Schultz can tell you the exact day she first started experiencing symptoms of Systemic Juvenile Idiopathic Arthritis (or SJIA for short). “It was November 14th, 1993,” she says matter-of-factly, “that’s when it became very apparent to my family. I remember being exhausted,”…
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