Todd Spurrier has logged an incredible 53,000 miles on his Ducati to raise awareness for colorectal cancer screening. He meets and photographs survivors and says , “I carry a piece of each survivor in my heart on every mile. They are my fuel.”

Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.

Patient advocate Josh Robbins is witty, fun, and super candid. He says, “My decision to disclose on social media that I was living with HIV was because I had the weight of the world telling me to do it. I felt safe enough. It was right for me.”

Before she was diagnosed with ADHD, Terry Matlen spent a lot of time trying to figure out what was wrong with her. “I felt like a failure,” she says. “I wondered how come I couldn’t do what every other woman I knew could…
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For newly diagnosed multiple myeloma patients, Peter Sennert represents hope. Peter, 57, was diagnosed with the rare cancerous blood disease 18 years ago and is still going strong. He and his wife, Mary Ellen, now devote themselves to advocating for blood cancer research…
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or Rheumatoid Arthritis Blogger and Advocate Daniel Malito, Laughter is the Best Medicine

As a kid, Daniel Malito could only watch from the sidelines as his classmates played sports and roughhoused. When he was eight years old, Malito started getting chronic low-grade fevers and joint aches. Over the next couple of years, his family saw a…
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Positive Living: How Davina “Dee” Conner Encourages People Diagnosed With HIV

When you suffer from a chronic illness, it’s natural to feel negative emotions sometimes. The problem is when those emotions take over your life. Just ask Davina “Dee” Conner. After she learned she had HIV in 1997, she hit a low point. For…
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Applying for disability wasn’t an easy decision for Erica Carrasco, the migraine blogger behind Achy Smile. She’d been a go-getter her whole life, but had suffered from increasingly severe headaches as an adult that eventually derailed her career. There was nothing left to…
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Meet Marvin Marvin Anderson works as an award-winning speaker, personal development empowerment coach, author and HIV advocate. He is also the founder of The Stigmocracy Organization. which is working to diminish stigma directed toward individuals infected or affected by HIV/AIDS. We asked Marvin to…
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Overcoming the Psoriasis Paralysis: How Alisha Bridges Became a Full-Time Blogger and Psoriasis Advocate.

Alisha Bridges wasn’t always the confident young woman she is today. After being diagnosed with psoriasis as a child, she spent most of her life covering up her skin from neck to toes and hiding her condition from just about everybody. Now she’s…
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Meet Rachel Rachel Hill is a writer and advocate who has been living with Hypothyroidism since she was 16 years old. She is the creator of The Invisible Hypothyroidism, an award-winning patient advocacy blog that focuses on helping others by advocating for a…
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U.S. Immigration Ban Takes Effect: Will Your Healthcare be Impacted?

On December 4, 2017, the Supreme Court approved the third version of the president’s travel ban to go into effect while legal challenges continue to be heard in the lower courts. Intended to protect the U.S. from the threat of terrorism, the regulation…
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It all started with a simple itch. Jason Greenspan was watching TV, thinking about his upcoming senior prom, when he scratched himself and felt a small, hard lump in one of his testicles. “I had a gut feeling it was something,” says Greenspan,…
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Breathe Easy: How One Man is Fighting To Change The Perception of Cystic Fibrosis

We deliver new health stories each week! –>   Inherited genetically, cystic fibrosis (CF) affects more than 30,000 people in the U.S. alone. In fact, about one in 25 people is a carrier of the disease. Still, many don’t know about CF or…
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7 Cancer Survivors You Should Follow

  Before the 1980’s the definition of a “cancer survivor” was someone who had shown no evidence of cancer for five years. But groups like the National Coalition for Cancer Survivorship (NCCS) recognized the need “for language that truly told the story of…
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We first met Jim and learned his story when he signed up to participate in a virtual patient panel. If you’re interested in sharing your story and hearing about opportunities like the one Jim had, sign up to share your story. “This is…
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You can’t put Charles Mattocks in just one box: actor, award-winning director, chef – he’s embraced a lot of roles in his life. One that’s most important to him personally, though, is his role as a health advocate, for both type 2 diabetes…
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  “It’s nothing, I’m fine.” Sound familiar? Some people just don’t like the doctor. Whether it’s fear, busy-ness, shame, discomfort, or something else, many choose to stay away. In fact, psychologists even have a name for this phenomenon: health information avoidance. But when…
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Mountain climbing with Crohn's

Matthew Holland is the picture of health. He’s tall, handsome, and in great physical shape. He’s the type of guy who seeks out physical challenges with gusto, spending his summer vacations on a mountain bike or wakeboard and eagerly trying new snowboarding challenges…
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Paddleboarding with Crohn's

What You Make of It As Steven Hawking slowly lost the ability to write, he compensated with visual methods for doing his work. Without his limitations, he may never have been known as one of the greatest minds in physics. Virginia Woolf used…
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