Flower Lungs

I remember vividly when a close family member was hit by an asthma attack that was exacerbated by dust and mold in a large arena filled with horses. When we bought the tickets, we didn’t think about how a simple show could lead…
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“I have fits of uncontrollable laughter and it’s not fun or funny.” That’s how Jennifer explains life with pseudobulbar affect (PBA). Wendy has the same condition and describes her experiences: “It’s frustrating because you have no control over [laughing or crying]. They occur…
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Meet Amy Amy Gietzen from Buffalo New York has been living with Systemic Scleroderma for 18 years. Her insights and wisdom come from living with this chronic condition for half of her life. Like other autoimmune disorders, systemic scleroderma occurs when the immune…
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At Health Stories Project, we’re fascinated by stories related to health and medicine, from the personal to the deeply profound. While this blog often focuses on sharing your stories, we also like to occasionally give a shout-out to some of the interesting books…
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Meet Marty Marty has been a traumatic brain injury (TBI) survivor since 1982. His accident occurred almost four decades ago, but he’s still working hard on his recovery all these years later. He’s made incredible progress and has a positive attitude that no…
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Podcasts are a uniquely intimate and wonderful experience. Having someone in your ear, talking to you, is lovely. This is especially true because many peope choose to listen to podcasts when they’re working, cleaning, or doing something when they’re alone that they’d rather…
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Nikki Albert has coped with chronic pain since she was a kid, when joint hypermobility syndrome left her with aching knees and insomnia at just eight years old. As a young adult, she was diagnosed with fibromyalgia and migraines. Now in her early…
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We recently shared the trailer for “Five Feet Apart” with people in the Health Stories Project community who are living with cystic fibrosis and asked them to share their initial thoughts about its accuracy and impact on their community.

Cancer is different for everyone, and rare cancers like AML can be even harder to cope with, as patients often must seek out testing, specialists, and undergo intense treatments. This post in honor of Health Stories Project member, Coel Peach continues his mission of boosting the experiences of people living with this condition.

We asked Health Stories Project community members living with age-related eye diseases if they had any tips for day-to-day life with low vision. These are the top 10 tools and tricks they recommended:

We asked the Health Stories Project community about their personal experiences with cancer — particularly the hardest parts — and they didn’t sugarcoat it. It’s challenging sometimes in ways they couldn’t anticipate.

Have you ever watched a TV show or documentary that got your health condition totally right (or totally wrong)? We’d love to hear about it! In the meantime, if you’re looking for something to watch on Netflix, these health stories (both fictional and non-fiction) may spark your interest. Enjoy!

Fear of disease progression is an understandably frightening thought that affects hundreds of thousands of people in the U.S.

We asked people living with multiple sclerosis what they would say to someone who fears progression of their MS. While the responses are from people with MS we feel they have the power to impact LOTS of people across many conditions.

“I think the best way to heal from cancer is to love life with all that you have,” he says. “Does everybody have to swim a river? No. But if they passionately pursue their dreams, it gives them the best chance to heal.”

“When you’re going through something as significant as cancer or depression, having a space you love is so important.”

Multiple sclerosis (MS) is a disease that causes the immune system to break down the protective covering of nerve cells, disrupting communication between the brain and the rest of the body. People living with MS often experience weakness in their limbs, slurred speech,…
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When Gene Mikov, 75, described his current skin care routine, he recited a set of rules: “Wear sunscreen, put on a hat and don’t get too much sun.” Gene has adhered to these rules — or at least the first two — since…
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Bipolar blogger Kitt O’Malley has found life purpose in writing

On paper, Kitt O’Malley is a typical overachiever. She loved school as a kid and attended Berkeley, earning a bachelor’s degree in legal studies. She went on to earn a master’s in psychology from a private college and studied theology at Fuller Seminary….
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