Taking the time to listen and care for your body is a critical life-skill. This is true for everyone, but especially when you’re living with chronic health conditions.  Sylvia of Virginia is living with lupus SLE, type 2 diabetes, rheumatoid arthritis (RA), depression,…
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Jae knows a thing or two about change. A passionate writer and volunteer in Chicago, he discovered he was living with multiple sclerosis (MS) in 2019. We would like to thank him for sharing candidly about the first stages of this life-changing diagnosis….
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Allyson's Art Journal

This description of healing and personal growth was written by community member, Allyson L. She responded to one of our story requests. Please leave your words of encouragement and inspiration in the comments below. I’ve always been crafty. I took the basic art…
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Putting Stigma To Bed Featured

Rachel from Dallas, Texas lives with Narcolepsy and is determined to flip the script when it comes to invisible illness. She is especially concerned with fighting stigma surrounding life with narcolepsy and echoes what many with this condition say, “[there are movies where…
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“All it took was one AL Amyloidosis survivor story for me to realize that I could also survive this challenge”

 This story was written by a new community member, Tove J. She responded to one of our story requests saying she is open about surviving a rare incurable disease “because other patients have shared their stories and they gave me hope.”  Please thank her for…
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Lisa is a high school special education teacher living and working in Holmen, WI. While a job in education can be challenging in it’s own right, Lisa also lives with a painful and debilitating autoimmune condition called ankylosing spondylitis (that’s pronounced ank-kih-low-sing spon-dill-eye-tiss)….
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I survived two very rare cancers in two years which included many treatments and surgeries. I want to encourage others who are facing a cancer diagnosis, and have the following advice to share: The best thing you can do receiving an initial cancer…
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Nativity Scene Painted on Sheet Music

I have always been an artist. I’ve dabbled in a bit of every type of media, mostly painting, photography, and fibers. I did art every day in some way before I got diagnosed with Behcet’s disease, an extremely rare autoimmune disease, and granulomatosis…
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Community member, Lanie M, sent in this story in response to one of our prompts. What was the best advice you’ve ever received? Leave it in the comments below! “Never let your challenges make you bitter.” This is something my mom talked to…
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Tanya and her kids

This candid, personal story was written by community member, Tanya W. She responded to one of our latest opportunities. Please thank her for her honesty and willingness to share in the comments below. When I first had diagnosed with lupus, I had two…
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Images of Frank running, biking, kayaking and advocating for lung cancer research and treatment

This story was written by community member, Frank Noll. Don’t forget to leave a big THANK YOU for his advocacy work in the comments below. Many people think that someone with advanced lung cancer is fairly old, frail, infirmed and probably a cigarette…
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Danita

It wasn’t that long ago that bipolar disorder was believed to be another condition like depression or schizophrenia. “Manic Depression” was first recognized in 1854 by Jules Falret, but it wasn’t until the early 1970s that it was recognized by the U.S. Congress…
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Karen smiling for the camera

Karen recently responded to one of our survey questions with her favorite hobby. Below is what she had to say. Having a chronic condition is a full-time job. Most of my time is spent attempting to keep my calendar of doctor appointments. I…
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Giovanni posing under water

The following inspirational story was written by community member, Giovanni Profeta. Help us celebrate his 2-mile swim in open water by leaving congratulations in the comments below! I am a sports enthusiast. Prior to my diagnosis, I was a swimmer and freediver. My…
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This story was written by community member, Shannah Hudson. If you would like to be featured in Stories From The Community check out our opportunities page for ways to participate! Emmalyn Reese Hudson graced us with her presence nine years ago, at 35 weeks…
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Lisa recently responded to one of our survey questions with her heartfelt health story. Below is what she had to say. Picture this: It’s six weeks before you’re getting married, you’re about to go on tour to promote your first full album, and…
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Would you like to be featured in Stories From The Community? Check out our new opportunities for ways to participate! Mary responded to our recent question about self-care. Move it or lose it, we say. So, move it, I do. As a lifelong…
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