Feature

Rosemary’s health concerns date back to 1984, when she was diagnosed with lupus and interstitial lung disease. In the decades since, she has been diagnosed with several other conditions, making each year more complex and challenging than the last. Looking back on her…
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Feature

Zoann managed asthma symptoms for nearly two decades only to find that the doctors she saw over those years had never truly seen her. They had never looked beyond her diagnosis to see that she had multiple health issues going on.  When Zoann…
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Feature

Pain has shaped Pam’s life for decades, both physical and mental. Others’ pain, too. She has served as a caregiver for multiple family members and in more recent years, after being diagnosed with rheumatoid arthritis and other conditions, shifted focus to her own…
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member art MSA Feature

In 2021, Cathy sent us her story about her harrowing experiences leading up to, and following, a multiple system atrophy (MSA) diagnosis. We checked in with her before publishing it, and in the time between, she had forgotten exactly what she’d shared with…
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walking in nature Feature

For many years, Megan’s multiple physical and mental health conditions have proven difficult to treat with standard medications. As a result, she has found alternate ways to find relief and peace. Here she shares some of what she has experienced and how she’s…
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Robin’s declining strength and stamina at work served as an alarm that something was wrong. It took three years, however, to identify what was causing these feelings of weakness and exhaustion. Here Robin shares the perspective gained from this long process — and…
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Frank L and his dog

In a span of just over five years, Frank experienced multiple health challenges that further complicated a mental health issue that, on its own, led to disability. This is how he described the journey and the perspective he gained along the way. Stress,…
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pointing fingers in blame

Despite a healthy, active lifestyle, Michael found himself in an ICU bed with kidney failure in 2019. He was diagnosed with multiple myeloma, underwent dialysis and chemotherapy and then a stem cell transplant. Still recovering nine months following this procedure and in search…
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Gina, living with rheumatoid arthritis

Gina’s life completely changed when she was diagnosed with rheumatoid arthritis. She went from being an active 34-year-old business owner to completely disabled by 46. Here she shares her story, along with encouraging words for others experiencing similar situations. Seeking Medical Care I…
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the MS iceberg

Multiple sclerosis (MS) is like personality — it’s very different from one person to another. The symptoms are unique to everyone diagnosed with MS and may be misunderstood by people who don’t live with the condition. March is Multiple Sclerosis Awareness Month, so…
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Kimberley, living with health issues after a work-related injury

An accident at work changed the trajectory of Kimberley’s life. Although her health issues may seem invisible to others, the pain she feels is very real. Here she shares a situation she encountered with someone she used to consider a friend and how…
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danielle, living with bipolar disorder

Danielle has been living with bipolar disorder since 1996. This condition, and others she lives with, affect her life daily. Here, she shares hurtful words her father told her and how comments like this affect her and others living with a similar condition….
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Lindsey, living with narcolepsy

Lindsey kept her narcolepsy diagnosis to herself, family and close friends, until September 2019 when she decided to finally post about her health experiences on her social media profiles. Here she shares how opening up about her diagnosis has helped her accept the…
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broken back

One winter night in 2000, Kara was involved in a terrible car accident and airlifted to a hospital. Faced with a long and difficult recovery but determined to live the life she’d planned, she worked through the pain caused by the accident for…
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Denise, living with HIV

Denise was diagnosed with human immunodeficiency virus (HIV) in the late 1980s and told she might only have one year to live. Here she shares what has given her strength in the decades since. A Bleak Prognosis [In the 1980s], my friends were…
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systemic lupus erythematosus

When Sylvia’s husband passed away, managing her health conditions — including systemic lupus erythematosus (SLE) — became exponentially more difficult. The key to her perseverance was receiving support from someone living with similar circumstances. Here she recounts her emotions following in the wake…
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Charco-Marie-Tooth disease

Jim has lived with Charco-Marie-Tooth disease, which affects peripheral nerves that control the muscles, since childhood. He was diagnosed with multiple sclerosis at 60 years old. He urges those who are recently diagnosed with a condition to accept, process and move past emotions…
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health challenges

Heidi’s health challenges began when she was very young and only compounded in her teenage years and early adulthood. Today, she continues to manage multiple physical and mental conditions — some with effective treatments and others through guesswork and specialist appointments. This is…
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cardiovascular disease

Dan’s medical history includes contracting bacterial meningitis, a cardiovascular disease diagnosis and the placement of multiple stents following a severe heart attack. Here he describes these aspects of his health journey and shares the wisdom he’s gained from them. Facing Mortality I [once]…
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Osteoporosis

Cynthia first broke one of her bones when she was eight years old. Since then, every five years or so, she has broken another. Before that count reached a dozen, she worried that something physical was contributing to the pattern — and her…
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Brian's Hashimoto's disease

Brian’s difficult and frustrating path to multiple diagnoses, including Hashimoto’s disease (chronic lymphocytic thyroiditis), is an apt reminder this Thyroid Awareness Month that the small gland plays a huge and vital role. When the thyroid functions incorrectly, it may stymie both patients and…
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2021

We each experienced 2021 differently—for some, this was the year they accomplished things they had been working towards for months, for others, diseases progressed and loved ones were lost. We recently asked our community to reflect on 2021 and all of the highs…
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hot flashes

The severity of hot flashes caused by menopause varies among women. Some women sweat through their clothing, while other may feel a slight rise in temperature. We recently asked our community how the symptoms of hot flashes has affected their lives the vast…
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mantras

The holidays around this time of year tend to be a joyous time, but for many this may be a time of mourning, triggering thoughts and unpleasant feelings. We’re here to remind you that it’s okay to not be okay, today and any…
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Karen’s health conditions have not only led to hospitalizations and life-threatening circumstances, but have acted as a wedge between her and her daughter over the years. Feeling alone and that she had nowhere to turn for support, Karen shared her experience and feelings…
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