We recently shared the trailer for “Five Feet Apart” with people in the Health Stories Project community who are living with cystic fibrosis and asked them to share their initial thoughts about its accuracy and impact on their community.
Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.
Patient advocate Josh Robbins is witty, fun, and super candid. He says, “My decision to disclose on social media that I was living with HIV was because I had the weight of the world telling me to do it. I felt safe enough. It was right for me.”
Cancer is different for everyone, and rare cancers like AML can be even harder to cope with, as patients often must seek out testing, specialists, and undergo intense treatments. This post in honor of Health Stories Project member, Coel Peach continues his mission of boosting the experiences of people living with this condition.
Among the many issues that affect women globally, from the poorest countries to the richest, healthcare is one of the most critical. Improving women’s health makes societies stronger. Countless women simply don’t feel like their doctors are taking them seriously.
After the stem-cell transplant failed, David Israel had three primary choices: a donor bone-marrow transplant, CAR T-cell therapy, or palliative care. David decided to try CAR-T cell therapy, a new treatment that was recently approved by the FDA.
We asked Health Stories Project community members living with age-related eye diseases if they had any tips for day-to-day life with low vision. These are the top 10 tools and tricks they recommended:
We asked the Health Stories Project community about their personal experiences with cancer — particularly the hardest parts — and they didn’t sugarcoat it. It’s challenging sometimes in ways they couldn’t anticipate.
Have you ever watched a TV show or documentary that got your health condition totally right (or totally wrong)? We’d love to hear about it! In the meantime, if you’re looking for something to watch on Netflix, these health stories (both fictional and non-fiction) may spark your interest. Enjoy!
Fear of disease progression is an understandably frightening thought that affects hundreds of thousands of people in the U.S.
We asked people living with multiple sclerosis what they would say to someone who fears progression of their MS. While the responses are from people with MS we feel they have the power to impact LOTS of people across many conditions.
Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.