“When we deny the story, it defines us. When we OWN THE STORY, we can write a brave new ending.”
– Brené Brown
We agree with Brené Brown.
Through surveys, interviews, and other activities, our members share their truths. They break down stigmas and describe the highs and lows of daily life. Our community helps define the very real struggles they go through alongside the wins they achieve. And they empower others with the support and knowledge from those who’ve stood where they now stand.
Their voices are also part of the broader healthcare community. They guide researchers, provide the medical community with a better understanding of life with illness, and by doing so help the entire healthcare chain keep a focus on providing patients with the best care.
We are a group of storytellers and researchers.
While we are not a non-profit, we work for you. Our job is to empower and encourage everyone with a health condition to speak about their experiences and advance healthcare. We work to make sure you have a voice at the table.
We recognize that not every problem has a simple solution. You may feel too small to make a difference or that change will not come until you are no longer in the fight. But, when you join thousands of other people contributing to critical health issues, you become a champion for healthcare and humanity. And that matters!
OUR CORE PRINCIPLES
We never sell your data and will not share it with third parties without your consent. When we do share your information with partners or vendors, it is in order to provide services to you.
For example: If you respond to a story request and qualify for a project offered by one of our partners, you could be asked to share your responses and contact information with them. Or, you could complete a research survey for us and qualify to receive a gift card. In both instances, we will ask your permission before sharing or using your data.
By sharing your health information with Health Stories Project, you are helping us generate awareness and advance treatment of your health condition. People living with your condition can benefit directly and indirectly from the information you provide to us and we are honored to be trusted with that responsibility.
If you have questions about our policy click here to read the full document.