Nikki Albert has coped with chronic pain since she was a kid, when joint hypermobility syndrome left her with aching knees and insomnia at just eight years old. As a young adult, she was diagnosed with fibromyalgia and migraines. Now in her early…
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Fear of disease progression is an understandably frightening thought that affects hundreds of thousands of people in the U.S.

We asked people living with multiple sclerosis what they would say to someone who fears progression of their MS. While the responses are from people with MS we feel they have the power to impact LOTS of people across many conditions.

Multiple sclerosis (MS) is a disease that causes the immune system to break down the protective covering of nerve cells, disrupting communication between the brain and the rest of the body. People living with MS often experience weakness in their limbs, slurred speech,…
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Patience and Perseverance: Living for Decades with Multiple Sclerosis

Multiple Sclerosis is a condition of the central nervous system that interferes with messages between the brain and the body. The National Multiple Sclerosis Society estimates that at least 400,000 in the U.S. have MS. For unknown reasons, people who live in northern…
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Not a Laughing (or Crying) Matter: The Impact of Pseudobulbar Affect

Insult to injury. For many people, this saying describes what it feels like to be diagnosed with Pseudobulbar Affect (PBA). PBA is a neurologic condition that appears in some people who already have certain major brain injuries or diseases, such as stroke, traumatic…
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Pseudobulbar Affect: Struggling with Emotional Control

We’re seeking people who live with Pseudobulbar Affect (and those who take care of them), who are interested in sharing their personal perspectives in an upcoming online activity. Qualified volunteers can receive up to $270. Click to learn more about this opportunity to share…
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January, 1980. Things were looking good for Mark Tallman. He had just been promoted at the oil company he worked for to run one of its warehouses near Salem, Ore. As he was conducting the inventory one morning, he dropped his pen. Paying…
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