Feature

There are more than 7,000 rare diseases registered with the National Organization for Rare Disorders and while each is unique, there are many commonalities that unite rare condition patients, families, caregivers and supporters. In the spirit of raising awareness of rare conditions, we…
Read More »

Feature

Everyone who lives with pain has an important story to share. We are looking for people who either have a current opioid prescription and are concerned about overdose or those who have witnessed or experienced a prescription opioid overdose. You may even qualify for a special project that includes travel.

Feature

If you have experienced a heart attack, stroke and/or high cholesterol, you may qualify for a special volunteer project that includes travel. Take our survey to learn more and find out if you qualify.

Feature

Colorectal cancer is the 2nd leading cause of cancer death among men and women combined. Sadly, 60% of colorectal cancer deaths could be prevented with screening. If you have ever been screened for colon cancer (no matter the result) you may qualify for a special project!

25 Insights From People Living with Schizophrenia

For people with schizophrenia, diagnosis can be a relief — all those symptoms finally start to make sense – but also a devastating and life-altering moment.  Schizophrenia is a chronic and severe mental disorder characterized by thoughts and experiences that are out of…
Read More »

From Ulcerative Colitis to Colon Cancer: How Renee Holt Dealt with a Dual Diagnosis

Ulcerative colitis is a common, chronic inflammatory disease that results in long-term inflammation and ulcers in the large intestine. It can cause stomach discomfort and rapid emptying of the colon. Even though ulcerative colitis has no known cure, through medication and a disciplined…
Read More »

Is Telemedicine The Future of Healthcare?

Smartphones and other web-connected devices have changed the way we live, putting a vast amount of information at our fingertips, entertaining us, and making countless tasks easier, including keeping tabs on health issues and wellness goals. They’re also expanding the ways in which…
Read More »

What a Pain – How the “Opioid Crisis” Impacts a Migraine Sufferer

It might start with a throb behind your eye. Or maybe you see an aura; a bright spot or some other change in your vision. Perhaps you just get nauseated suddenly. Sometimes bright lights or sounds become all-of-a-sudden intolerable. Migraine headaches are experienced…
Read More »

Not a Laughing (or Crying) Matter: The Impact of Pseudobulbar Affect

Insult to injury. For many people, this saying describes what it feels like to be diagnosed with Pseudobulbar Affect (PBA). PBA is a neurologic condition that appears in some people who already have certain major brain injuries or diseases, such as stroke, traumatic…
Read More »

It all started with a simple itch. Jason Greenspan was watching TV, thinking about his upcoming senior prom, when he scratched himself and felt a small, hard lump in one of his testicles. “I had a gut feeling it was something,” says Greenspan,…
Read More »

5 Self Care Tips for People Living with Chronic Illness

When it comes to your health and happiness, a take-charge attitude can make a huge difference. There’s nothing selfish about self-care, which simply means actively taking care of you, whether it’s following a nutritious diet, practicing meditation, or indulging in a few hours…
Read More »

We’re seeking people who live with narcolepsy who are interested in sharing their personal perspectives in an upcoming advisory board.  Learn more about this opportunity to share your story! We all get sleepy during the day sometimes. A long meeting might lead to…
Read More »

More Than Lyme: How Chloe Built a Community for Healing

Have you been affected by Lyme disease or another health condition? Sign up to share your experiences with Health Stories Project! Chloe O’Neill is a 25-year-old woman who has been living with chronic Lyme disease for over 15 years. Originally a native of the Seattle area,…
Read More »

9 Artists on Instagram Who Are Living With Chronic Illness

We deliver new health stories each week! –>   Many people who live with a chronic illness find that there are few genuine distractions from the pain and inconvenience that come with being sick. This might be why so many patients turn to…
Read More »

6 Things You Should Know About Life with Hereditary Angioedema (HAE)

We deliver new health stories each week! –>   Imagine visiting Yankee Stadium and being selected and singled out of the entire crowd. Being born with Hereditary angioedema (or HAE) is a similarly rare event. It’s so rare, in fact, that many doctors aren’t…
Read More »

 Just Diagnosed with Melanoma? These 24 Messages Are for You

Catching melanoma early can save your life, but diagnosis is often a tricky process. After initial discovery of a suspicious mole there is a biopsy (which involves skin tissue being removed and viewed under a microscope). Followed by a check of the lymph…
Read More »

Breathe Easy: How One Man is Fighting To Change The Perception of Cystic Fibrosis

We deliver new health stories each week! –>   Inherited genetically, cystic fibrosis (CF) affects more than 30,000 people in the U.S. alone. In fact, about one in 25 people is a carrier of the disease. Still, many don’t know about CF or…
Read More »

9 Podcasts about Health Worth Checking Out

I’m a podcast geek. For me, the cool thing about podcasts is that you can hear interesting stories, and learn something new, all while doing something totally mundane. I can learn about coffee while I’m grocery shopping, meditation while I’m doing the dishes…
Read More »

Agender in America: Transgender Healthcare Experiences

This is the second of two planned articles detailing gendered experiences in the American healthcare system. Click here to read Part 1. If you would like to share your health experiences, please sign up here. While the transgender community has gained greater visibility,…
Read More »

7 Cancer Survivors You Should Follow

  Before the 1980’s the definition of a “cancer survivor” was someone who had shown no evidence of cancer for five years. But groups like the National Coalition for Cancer Survivorship (NCCS) recognized the need “for language that truly told the story of…
Read More »

5 Ways to Share Your Health Story

How does treatment for multiple sclerosis affect someone’s social life? Does medication for Hidradenitis Suppurativa improve emotional well-being? Can exercise make daily life with type 1 diabetes easier? We all know that questions like these are important for people living with a serious…
Read More »

We first met Jim and learned his story when he signed up to participate in a virtual patient panel. If you’re interested in sharing your story and hearing about opportunities like the one Jim had, sign up to share your story. “This is…
Read More »

Pregnancy is supposed to be a joyous time of anticipation. Baby showers, nurseries, and nesting all add to the fun and excitement. Even when morning sickness gets extreme, and doctors’ visits get old, it’s hard to imagine anything truly ruining that special time…
Read More »

Netflix & Heal - From cancer to congestive heart failure, these 8 Netflix documentaries tell true stories of incredible people fighting illness.

When it comes to recovering from an illness or staying in because of something chronic, Netflix documentaries can be a life saver. Not only are they a welcome distraction, they can also help us find more understanding and compassion towards those with experiences…
Read More »

Join Health Stories Project

Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

Tweets by HealthStories

What are your favorite self-care activities? 💆🛀🏃‍♀️

Submit your fave picture and you could be featured on our blog! https://t.co/WCO3rVXbRo

It's a common condition you might not notice until you know about it, but Dr. Charles Eaton at @dupuytren is working to find new ways to treat this slow-progressing hand condition. YOU can help! https://t.co/mrRarDtLfb

I was 17 years old when I was diagnosed with cancer. Now, I’m partnering w/ @HealthStories to raise awareness for another form of cancer. If you’ve had an at-home #coloncancer test or colonoscopy, take this survey and share about your screening choice! https://t.co/ox7el6UALz

Load More...