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Tinu Abayomi-Paul Feature

Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.

Multiple sclerosis (MS) is a disease that causes the immune system to break down the protective covering of nerve cells, disrupting communication between the brain and the rest of the body. People living with MS often experience weakness in their limbs, slurred speech,…
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Jen James Shares How She Turned Her Experience With Mental Health Crisis Into An Opportunity To Help Others

Editor’s note: If you or a loved one are living with depression, bipolar, and/or thoughts of self harm the following post could be potentially triggering. If you are overwhelmed or in pain you can contact the Crisis Text Line by texting “HOME” to 741741. Meet Jen……
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Before she was diagnosed with ADHD, Terry Matlen spent a lot of time trying to figure out what was wrong with her. “I felt like a failure,” she says. “I wondered how come I couldn’t do what every other woman I knew could…
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Immunotherapy is a relatively new and exciting type of cancer treatment that activates the body’s immune system to help identify and fight cancer cells. New studies have shown that a combination of immunotherapy and chemotherapy greatly improves lung cancer recovery rates, leading researchers…
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Darcel White is blogger, autism and dyslexia advocate, and single mother to three children with food allergies, seasonal allergies, and asthma. She shared with us how she found out about her children’s condition and the actions she takes every day to make sure…
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We say it often: sharing your story makes a difference, but don’t take my word for it, this comic by Tatiana Gill was inspired by comments and stories from Health Stories Project community members. 5 Reasons to share from patient advocates: 1. “My greatest support would…
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Steering through CLL Together: A Couple Chooses Providers, Procedures and Clinical Trials

When Jay Sperling went to have pre-operative bloodwork done for a minor knee surgery, he hadn’t anticipated the results. His white blood cell count was abnormally high. He didn’t have any infections (which can often cause the white cell count to go up),…
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For newly diagnosed multiple myeloma patients, Peter Sennert represents hope. Peter, 57, was diagnosed with the rare cancerous blood disease 18 years ago and is still going strong. He and his wife, Mary Ellen, now devote themselves to advocating for blood cancer research…
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When Gene Mikov, 75, described his current skin care routine, he recited a set of rules: “Wear sunscreen, put on a hat and don’t get too much sun.” Gene has adhered to these rules — or at least the first two — since…
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Ten years ago, when Carolyn first met her husband, John, she knew he “had something.” He’d exhibited dyskinesia, or involuntary muscle movements, as they’d chatted. On their next date, when he explained that he suffered from early onset Parkinson’s disease, her response was…
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How One Non-Hodgkin’s Lymphoma Survivor Found Support – And Continues to Reach Out to Others

Alison Gomez, a two-time non-Hodgkin’s lymphoma (NHL) survivor, began vlogging (video blogging) as a way to connect with and support others with her condition. She speaks openly about her experiences with various treatments, including chemotherapy, radiation, a bone marrow transplant, and the emotions…
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or Rheumatoid Arthritis Blogger and Advocate Daniel Malito, Laughter is the Best Medicine

As a kid, Daniel Malito could only watch from the sidelines as his classmates played sports and roughhoused. When he was eight years old, Malito started getting chronic low-grade fevers and joint aches. Over the next couple of years, his family saw a…
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Bipolar blogger Kitt O’Malley has found life purpose in writing

On paper, Kitt O’Malley is a typical overachiever. She loved school as a kid and attended Berkeley, earning a bachelor’s degree in legal studies. She went on to earn a master’s in psychology from a private college and studied theology at Fuller Seminary….
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Positive Living: How Davina “Dee” Conner Encourages People Diagnosed With HIV

When you suffer from a chronic illness, it’s natural to feel negative emotions sometimes. The problem is when those emotions take over your life. Just ask Davina “Dee” Conner. After she learned she had HIV in 1997, she hit a low point. For…
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A Life’s Work: How Nitika Chopra Chose Happiness While Living with Chronic Illness

When some people smile, it’s downright infectious. Such is the case for Nitika Chopra, a wellness blogger and social media influencer who radiates positive energy across multiple platforms, including Instagram, where she has amassed more than 35,000 followers. Chopra directs her good vibes…
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5 Insights For The Newly Diagnosis From People Living With HIV

Even though approximately 37 million people around the world live with HIV, it is still an unknown subject for many. I had the chance to meet with five HIV advocates and educators to learn more about positive living. They shared some tremendous insights:…
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How One Blogger Is Finding Strength and Community After An Early Osteoporosis Diagnosis

Osteoporosis is often thought of a condition that afflicts the elderly — and in fact, a large percentage of Americans over the age of 80 are afflicted with it to some degree, particularly women. But the disease, which causes a loss of bone…
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Professional fighter, DJ, and fitness model Coel Peach “couldn’t figure out what was going on” when he started coughing up blood and feeling unusually tired all the time. After a year of experiencing these symptoms, Coel was diagnosed with acute myeloid leukemia. Now,…
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Applying for disability wasn’t an easy decision for Erica Carrasco, the migraine blogger behind Achy Smile. She’d been a go-getter her whole life, but had suffered from increasingly severe headaches as an adult that eventually derailed her career. There was nothing left to…
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Living with Borderline Personality Disorder: “You Are Not Your Illness.”

Editor’s note: If you or a loved one are living with eating disorder(s), borderline personality disorder, or have experience with self harm the following post could be potentially triggering. You can contact the Crisis Text Line by texting “HOME” to 741741 or call the National Suicide Prevention…
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Join Health Stories Project

Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

Tweets by HealthStories

Raise your hand if you have a mental illness and you’ve ever:

- cried in public
- wanted to take a sick day for your mental health but felt too guilty to
- lied about being okay
- made plans even though your anxiety was killing you
- put your own self-care aside for someone else

There’s something so wonderful about being taken care of out of love, not necessity. I think for a lot of us, we ask for (or our bodies demand) help because we physically can’t do something. But having someone offer, just because, is the best. #ra #arthritis

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