Feature

We’re looking for people to give an inside look at life with a special needs child during these difficult times. Health Condition: Any pediatric condition Demographics: 18+; U.S. Residents Special Request(s): Everyone can contribute their experiences to this project. Travel & Honoraria: Those…
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Feature

We’re looking for people to give an inside look at life with hidradenitis suppurativa. You will have the chance to participate in a Health Stories Project blog post plus videos, speaking engagements and more through one of our partners. Health Condition: Hidradenitis Suppurativa…
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Feature

We are looking for people who are interested in giving an inside look at life with a health condition during these uncertain times. Your answers to this story request may appear as a Health Stories Project blog post.

Taryn, Jessica and Jacquie portraits

Taryn J. age 26, was a natural homebody before a pandemic struck Washington state, and now staying at home is enforced by law. Jessica Cannon, age 27, commuted to Seattle by train for almost an hour to reach her public accounting firm, until…
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Right now, the world is a scary and uncertain place. From disrupted treatment, lost work and wages, healthcare rationing, social isolation, and subsequent depression, the coronavirus (COVID-19) is disrupting the lives of every person in the U.S. (and the world!). These issues are…
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Taking the time to listen and care for your body is a critical life-skill. This is true for everyone, but especially when you’re living with chronic health conditions.  Sylvia of Virginia is living with lupus SLE, type 2 diabetes, rheumatoid arthritis (RA), depression,…
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Jae knows a thing or two about change. A passionate writer and volunteer in Chicago, he discovered he was living with multiple sclerosis (MS) in 2019. We would like to thank him for sharing candidly about the first stages of this life-changing diagnosis….
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Allyson's Art Journal

This description of healing and personal growth was written by community member, Allyson L. She responded to one of our story requests. Please leave your words of encouragement and inspiration in the comments below. I’ve always been crafty. I took the basic art…
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When Health Stories Project invited readers to share their experiences with lupus, we received a lot of responses, which ranged from humorous to heartbreaking. Lupus, a long-term autoimmune disease in which the immune system goes haywire and attacks healthy tissue, affects everybody differently…
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Putting Stigma To Bed Featured

Rachel from Dallas, Texas lives with Narcolepsy and is determined to flip the script when it comes to invisible illness. She is especially concerned with fighting stigma surrounding life with narcolepsy and echoes what many with this condition say, “[there are movies where…
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“All it took was one AL Amyloidosis survivor story for me to realize that I could also survive this challenge”

 This story was written by a new community member, Tove J. She responded to one of our story requests saying she is open about surviving a rare incurable disease “because other patients have shared their stories and they gave me hope.”  Please thank her for…
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Lisa is a high school special education teacher living and working in Holmen, WI. While a job in education can be challenging in it’s own right, Lisa also lives with a painful and debilitating autoimmune condition called ankylosing spondylitis (that’s pronounced ank-kih-low-sing spon-dill-eye-tiss)….
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Beth Morton was in her mid-30s on the cusp of finishing her PhD when the chronic migraines began. At the time, she was no stranger to debilitating migraine attacks — she’d been having them a couple of times a month for two decades….
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Opportunity

Thank you for being a part of Health Stories Project! Take two minutes to tell us a bit more about yourself. Your responses will help us: Notify you of projects that match your interests, Learn and spread awareness about your health condition(s), Avoid…
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Flower Lungs

I remember vividly when a close family member was hit by an asthma attack that was exacerbated by dust and mold in a large arena filled with horses. When we bought the tickets, we didn’t think about how a simple show could lead…
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Multiple myeloma survivor Sandy, says that “fighting this alone without support is a hard, rough road.” This is true not only for survivors but for family and caregivers as well. If someone you love is dealing with cancer you may feel overwhelmed, helpless,…
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“I have fits of uncontrollable laughter and it’s not fun or funny.” That’s how Jennifer explains life with pseudobulbar affect (PBA). Wendy has the same condition and describes her experiences: “It’s frustrating because you have no control over [laughing or crying]. They occur…
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I survived two very rare cancers in two years which included many treatments and surgeries. I want to encourage others who are facing a cancer diagnosis, and have the following advice to share: The best thing you can do receiving an initial cancer…
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Nativity Scene Painted on Sheet Music

I have always been an artist. I’ve dabbled in a bit of every type of media, mostly painting, photography, and fibers. I did art every day in some way before I got diagnosed with Behcet’s disease, an extremely rare autoimmune disease, and granulomatosis…
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Community member, Lanie M, sent in this story in response to one of our prompts. What was the best advice you’ve ever received? Leave it in the comments below! “Never let your challenges make you bitter.” This is something my mom talked to…
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PR Maven Michelle Rathman Believes in the “Power of Rural” Medicine

When Michelle Rathman tells her personal story of how a successful public relations expert shifted her focus from representing bestselling authors to advocating for rural healthcare, the audience listens raptly. Hands always shoot up when she asks if anybody else had a medical…
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Tanya and her kids

This candid, personal story was written by community member, Tanya W. She responded to one of our latest opportunities. Please thank her for her honesty and willingness to share in the comments below. When I first had diagnosed with lupus, I had two…
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John Linnell knows how to put people at ease. When asked how he’s doing, he delivers a humorous response with impeccable timing. “If I were any better, I’d be twins,” he says, chuckling a little at his own well-worn bit. “But then I’d…
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Join Health Stories Project

Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

Tweets by HealthStories

We asked our community about their experiences during the COVID-19 pandemic. The response we received was remarkable! Here's what you need to know straight from folks who are living with serious underlying conditions. #highriskcovid19 https://healthstoriesproject.com/highriskcovid19-underlying-condition/

Do hope that perhaps we will *all* emerge from this knowing that we are *all* vulnerable. Talking about “the vulnerable” without including yourself is a colossal act of self deception.

I'm well. My family is well, & I'm grateful. But I get so blue at night. Maybe its because after another long, isolated day of bad, scary pandemic news, I'm just so sad, angry, & feel so effing helpless. I worry for all my #HighRiskCovid19 friends. For everyone.
Love to you all.

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Share Your Opinion About COVID-19

The healthcare community and media need to hear from those who would be most at risk.