creativity Feature

Hobbies don’t just help us pass the time. These enjoyable activities can have mental and physical health benefits as well. Three Health Stories Project members — Jolie, Kanani and Tyler — share how their creative pursuits help them manage their health, from providing…
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Matt shares his HIV diagnosis Feature

Sometimes revealing an especially personal or difficult matter to others can change everything — for the better. Saying that is one thing, however, and doing it is something altogether different. Here Matt shares his life-changing decision to reveal his human immunodeficiency virus (HIV)…
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eczema

Eczema and various allergies have been with Celeste since birth — and she said she is in menopause today. Here she candidly recalls the challenges she has persevered over the decades and how the stresses of life have intertwined with the shifting intensity…
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heart attack survivor

Brad admitted to putting off medical care when he probably needed it earlier in his life. After a heart attack in 2018, he realized he should take a more proactive approach. Since then, he has dedicated himself to staying active and maintaining his…
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Eczema

Eczema, also known as atopic dermatitis, is a health condition that makes skin red and itchy. It is most common in people who have a family history of the condition and although it typically develops in early childhood, it can occur at any…
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GVHD

Graft versus host disease (GVHD) is a condition that may occur following a transplant using donor bone marrow or stem cells. More than 20,000 people every year are diagnosed with GVHD. The chances of developing GHVD and its severity may vary between individuals. The…
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Isabel M. from Chaps, New Mexico is living with Hypermobile Ehlers-Danlos syndrome, or hEDS. At the age of 22, she’s already seen a lifetime of diagnoses. She’s spent half of the past 2 years recovering from 5 surgeries and at the time of…
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positivity is my super power

Heidi P. from Ohio, sent us the following story. Like 3,000 other community members, Heidi has multiple sclerosis (MS), and was diagnosed 29 years ago in 1992. Her MS story reflects what so many  others who have chronic autoimmune conditions have told us….
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Community Insights Are Valuable Our site will never be a place to come and get every fact or the latest piece of news about any health condition. However, we will continue to share results from surveys you generously respond to. Last year, we…
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We’re all experiencing this pandemic both together and in isolation. We checked in one last time in 2020 and asked how you all were doing. Some of the questions were new, and some were identical to questions we asked last spring so we could…
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Lisa and Matt are Health Stories Project members from Austin, Texas that believe their community made the difference when Matt had an unexpected hospital stay related to colon cancer. They allowed us to visit them (socially distanced!) to capture their story. Please join…
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Black Health Matters Providing health solutions for the mind, body and soul. A resource for health and wellness within the African American community. Website: https://blackhealthmatters.com/ Twitter: https://twitter.com/BHMinfo   Black Women’s Health A national nonprofit dedicated solely to the health & wellness of Black…
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Opportunity

Brene Brown says, “There is no courage without vulnerability.” What would you like to share about a time that you felt courageous while being vulnerable?

In Dallas, Texas, in the late 1970s, Gail Henkin was the youthful, earnest subject of a photoshoot. She smiled. She gazed at the camera. She felt a flutter of pride. Despite her grandmother’s death from lung cancer, she held a cigarette—and many poses—as…
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Opportunity

One challenge many people face is living with several serious health conditions. This can have a major impact on your ability to work, time with friends and family, and it can even limit your ability to go out and enjoy the world.

Community member, David G, sent in this story in response to one of our story requests. This is our first story about Moebius Syndrome., a rare neurological condition that researchers estimate affects 1 in 50,000 to 1 in 500,000 newborns. It can be…
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Dan “Dry Dock” Shockley is a Health Stories Project member from California who, after retiring from the military and surviving hereditary colon cancer, is the definition of a warrior. He recently responded to our Shared Experiences story request about people sharing important experiences…
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What happens when you develop a serious autoimmune condition at a young age? For young people living with Hidradenitis Suppurativa (commonly called HS), it can mean embarrassment, pain, confusion, and the frustration that comes with limited information. While the average age of onset…
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Opportunity

If you live with an invisible illness you know exactly how hurtful worlds can be even if they come from someone who has good intentions.

 This story was written by a community member, Cindy B. She responded to one of our story requests about life with cancer.   Two years ago, a growth in my pulmonary artery was discovered by accident.  Since then, a diagnosis of fibromuscular dysplasia and…
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MacKenzie is a Health Stories Project member from Kentucky who is most passionate about changing the way people see folks with multiple sclerosis, “They tend to focus on all the things we can’t do instead of all the things we can.” She recently responded…
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For Art, who was diagnosed with HIV in January 1989, watching the COVID-19 pandemic unfold has been reminiscent of his experience living through the AIDS epidemic that ravaged the US in the 1980s and 1990s. “I grew up in the epicenter of HIV…
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Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

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