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Chronic obstructive pulmonary disease (COPD) can be much more than difficulty breathing and an increased risk of respiratory infection. Help others in the healthcare community better understand what life is like with COPD by taking this survey and sharing your story. Plus, you…
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If you have experienced a heart attack, stroke and/or high cholesterol, you may qualify for a special volunteer project that includes travel. Take our survey to learn more and find out if you qualify.

We recently shared the trailer for “Five Feet Apart” with people in the Health Stories Project community who are living with cystic fibrosis and asked them to share their initial thoughts about its accuracy and impact on their community.

Opportunity

Colorectal cancer is the 2nd leading cause of cancer death among men and women combined. Sadly, 60% of colorectal cancer deaths could be prevented with screening. If you have ever been screened for colon cancer (no matter the result) you may qualify for a special project!

Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.

Patient advocate Josh Robbins is witty, fun, and super candid. He says, “My decision to disclose on social media that I was living with HIV was because I had the weight of the world telling me to do it. I felt safe enough. It was right for me.”

Cancer is different for everyone, and rare cancers like AML can be even harder to cope with, as patients often must seek out testing, specialists, and undergo intense treatments. This post in honor of Health Stories Project member, Coel Peach continues his mission of boosting the experiences of people living with this condition.

Among the many issues that affect women globally, from the poorest countries to the richest, healthcare is one of the most critical. Improving women’s health makes societies stronger. Countless women simply don’t feel like their doctors are taking them seriously.

After the stem-cell transplant failed, David Israel had three primary choices: a donor bone-marrow transplant, CAR T-cell therapy, or palliative care. David decided to try CAR-T cell therapy, a new treatment that was recently approved by the FDA.

We asked Health Stories Project community members living with age-related eye diseases if they had any tips for day-to-day life with low vision. These are the top 10 tools and tricks they recommended:

We asked the Health Stories Project community about their personal experiences with cancer — particularly the hardest parts — and they didn’t sugarcoat it. It’s challenging sometimes in ways they couldn’t anticipate.

Have you ever watched a TV show or documentary that got your health condition totally right (or totally wrong)? We’d love to hear about it! In the meantime, if you’re looking for something to watch on Netflix, these health stories (both fictional and non-fiction) may spark your interest. Enjoy!

Fear of disease progression is an understandably frightening thought that affects hundreds of thousands of people in the U.S.

We asked people living with multiple sclerosis what they would say to someone who fears progression of their MS. While the responses are from people with MS we feel they have the power to impact LOTS of people across many conditions.

“I think the best way to heal from cancer is to love life with all that you have,” he says. “Does everybody have to swim a river? No. But if they passionately pursue their dreams, it gives them the best chance to heal.”

We wanted to know how the “opioid crisis” was effecting people in our community, so we sent out a call looking for people living with chronic pain who are taking or have been prescribed opioid pain treatment who wanted to share their thoughts and opinions.

“When you’re going through something as significant as cancer or depression, having a space you love is so important.”

Multiple sclerosis (MS) is a disease that causes the immune system to break down the protective covering of nerve cells, disrupting communication between the brain and the rest of the body. People living with MS often experience weakness in their limbs, slurred speech,…
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Jen James Shares How She Turned Her Experience With Mental Health Crisis Into An Opportunity To Help Others

Editor’s note: If you or a loved one are living with depression, bipolar, and/or thoughts of self harm the following post could be potentially triggering. If you are overwhelmed or in pain you can contact the Crisis Text Line by texting “HOME” to 741741. Meet Jen……
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Before she was diagnosed with ADHD, Terry Matlen spent a lot of time trying to figure out what was wrong with her. “I felt like a failure,” she says. “I wondered how come I couldn’t do what every other woman I knew could…
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Immunotherapy is a relatively new and exciting type of cancer treatment that activates the body’s immune system to help identify and fight cancer cells. New studies have shown that a combination of immunotherapy and chemotherapy greatly improves lung cancer recovery rates, leading researchers…
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Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

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"I attribute a quick diagnosis to having telltale signs of #Dermatomyositis at the onset and having a dermatologist familiar with DM to catch it and make the referral. That isn’t the case for so many people who go years without a diagnosis!" https://t.co/pKsK4TuN5f #raredisease

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“The greatest source of support has been my family. It’s also important that I have a work family and work that is supportive of me and my recovery and rehabilitation.” - Marty, #TraumaticBrainInjury https://t.co/YGfiWFKMO2

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