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Tinu Abayomi-Paul Feature

Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.

After the stem-cell transplant failed, David Israel had three primary choices: a donor bone-marrow transplant, CAR T-cell therapy, or palliative care. David decided to try CAR-T cell therapy, a new treatment that was recently approved by the FDA.

10 tips for coping with age-related eye conditions from our community

We asked Health Stories Project community members living with age-related eye diseases if they had any tips for day-to-day life with low vision. These are the top 10 tools and tricks they recommended:

What are some struggles people with cancer have that don’t get talked about?

We asked the Health Stories Project community about their personal experiences with cancer — particularly the hardest parts — and they didn’t sugarcoat it. It’s challenging sometimes in ways they couldn’t anticipate.

Have you ever watched a TV show or documentary that got your health condition totally right (or totally wrong)? We’d love to hear about it! In the meantime, if you’re looking for something to watch on Netflix, these health stories (both fictional and non-fiction) may spark your interest. Enjoy!

Fear of disease progression is an understandably frightening thought that affects hundreds of thousands of people in the U.S.

We asked people living with multiple sclerosis what they would say to someone who fears progression of their MS. While the responses are from people with MS we feel they have the power to impact LOTS of people across many conditions.

“I think the best way to heal from cancer is to love life with all that you have,” he says. “Does everybody have to swim a river? No. But if they passionately pursue their dreams, it gives them the best chance to heal.”

We wanted to know how the “opioid crisis” was effecting people in our community, so we sent out a call looking for people living with chronic pain who are taking or have been prescribed opioid pain treatment who wanted to share their thoughts and opinions.

“When you’re going through something as significant as cancer or depression, having a space you love is so important.”

Multiple sclerosis (MS) is a disease that causes the immune system to break down the protective covering of nerve cells, disrupting communication between the brain and the rest of the body. People living with MS often experience weakness in their limbs, slurred speech,…
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Jen James Shares How She Turned Her Experience With Mental Health Crisis Into An Opportunity To Help Others

Editor’s note: If you or a loved one are living with depression, bipolar, and/or thoughts of self harm the following post could be potentially triggering. If you are overwhelmed or in pain you can contact the Crisis Text Line by texting “HOME” to 741741. Meet Jen……
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Before she was diagnosed with ADHD, Terry Matlen spent a lot of time trying to figure out what was wrong with her. “I felt like a failure,” she says. “I wondered how come I couldn’t do what every other woman I knew could…
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Immunotherapy is a relatively new and exciting type of cancer treatment that activates the body’s immune system to help identify and fight cancer cells. New studies have shown that a combination of immunotherapy and chemotherapy greatly improves lung cancer recovery rates, leading researchers…
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Darcel White is blogger, autism and dyslexia advocate, and single mother to three children with food allergies, seasonal allergies, and asthma. She shared with us how she found out about her children’s condition and the actions she takes every day to make sure…
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We say it often: sharing your story makes a difference, but don’t take my word for it, this comic by Tatiana Gill was inspired by comments and stories from Health Stories Project community members. 5 Reasons to share from patient advocates: 1. “My greatest support would…
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Steering through CLL Together: A Couple Chooses Providers, Procedures and Clinical Trials

When Jay Sperling went to have pre-operative bloodwork done for a minor knee surgery, he hadn’t anticipated the results. His white blood cell count was abnormally high. He didn’t have any infections (which can often cause the white cell count to go up),…
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For newly diagnosed multiple myeloma patients, Peter Sennert represents hope. Peter, 57, was diagnosed with the rare cancerous blood disease 18 years ago and is still going strong. He and his wife, Mary Ellen, now devote themselves to advocating for blood cancer research…
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When Gene Mikov, 75, described his current skin care routine, he recited a set of rules: “Wear sunscreen, put on a hat and don’t get too much sun.” Gene has adhered to these rules — or at least the first two — since…
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Ten years ago, when Carolyn first met her husband, John, she knew he “had something.” He’d exhibited dyskinesia, or involuntary muscle movements, as they’d chatted. On their next date, when he explained that he suffered from early onset Parkinson’s disease, her response was…
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Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

Tweets by HealthStories

Raise your hand if you have a mental illness and you’ve ever:

- cried in public
- wanted to take a sick day for your mental health but felt too guilty to
- lied about being okay
- made plans even though your anxiety was killing you
- put your own self-care aside for someone else

There’s something so wonderful about being taken care of out of love, not necessity. I think for a lot of us, we ask for (or our bodies demand) help because we physically can’t do something. But having someone offer, just because, is the best. #ra #arthritis

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