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Tonianne has lived with physical and mental health conditions since childhood. These are their frank, empathetic words about coping and learning over time — a valuable message all the more appropriate during this Mental Health Awareness Month. This story mentions self-harm and other…
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Rosemary’s health concerns date back to 1984, when she was diagnosed with lupus and interstitial lung disease. In the decades since, she has been diagnosed with several other conditions, making each year more complex and challenging than the last. Looking back on her…
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Zoann managed asthma symptoms for nearly two decades only to find that the doctors she saw over those years had never truly seen her. They had never looked beyond her diagnosis to see that she had multiple health issues going on.  When Zoann…
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Pain has shaped Pam’s life for decades, both physical and mental. Others’ pain, too. She has served as a caregiver for multiple family members and in more recent years, after being diagnosed with rheumatoid arthritis and other conditions, shifted focus to her own…
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member art MSA Feature

In 2021, Cathy sent us her story about her harrowing experiences leading up to, and following, a multiple system atrophy (MSA) diagnosis. We checked in with her before publishing it, and in the time between, she had forgotten exactly what she’d shared with…
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walking in nature Feature

For many years, Megan’s multiple physical and mental health conditions have proven difficult to treat with standard medications. As a result, she has found alternate ways to find relief and peace. Here she shares some of what she has experienced and how she’s…
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Lisa is a high school special education teacher living and working in Holmen, WI. While a job in education can be challenging in it’s own right, Lisa also lives with a painful and debilitating autoimmune condition called ankylosing spondylitis (that’s pronounced ank-kih-low-sing spon-dill-eye-tiss)….
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I survived two very rare cancers in two years which included many treatments and surgeries. I want to encourage others who are facing a cancer diagnosis, and have the following advice to share: The best thing you can do receiving an initial cancer…
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Nativity Scene Painted on Sheet Music

I have always been an artist. I’ve dabbled in a bit of every type of media, mostly painting, photography, and fibers. I did art every day in some way before I got diagnosed with Behcet’s disease, an extremely rare autoimmune disease, and granulomatosis…
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Community member, Lanie M, sent in this story in response to one of our prompts. What was the best advice you’ve ever received? Leave it in the comments below! “Never let your challenges make you bitter.” This is something my mom talked to…
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Tanya and her kids

This candid, personal story was written by community member, Tanya W. She responded to one of our latest opportunities. Please thank her for her honesty and willingness to share in the comments below. When I first had diagnosed with lupus, I had two…
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Images of Frank running, biking, kayaking and advocating for lung cancer research and treatment

This story was written by community member, Frank Noll. Don’t forget to leave a big THANK YOU for his advocacy work in the comments below. Many people think that someone with advanced lung cancer is fairly old, frail, infirmed and probably a cigarette…
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Danita

It wasn’t that long ago that bipolar disorder was believed to be another condition like depression or schizophrenia. “Manic Depression” was first recognized in 1854 by Jules Falret, but it wasn’t until the early 1970s that it was recognized by the U.S. Congress…
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Karen smiling for the camera

Karen recently responded to one of our survey questions with her favorite hobby. Below is what she had to say. Having a chronic condition is a full-time job. Most of my time is spent attempting to keep my calendar of doctor appointments. I…
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Giovanni posing under water

The following inspirational story was written by community member, Giovanni Profeta. Help us celebrate his 2-mile swim in open water by leaving congratulations in the comments below! I am a sports enthusiast. Prior to my diagnosis, I was a swimmer and freediver. My…
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This story was written by community member, Shannah Hudson. If you would like to be featured in Stories From The Community check out our opportunities page for ways to participate! Emmalyn Reese Hudson graced us with her presence nine years ago, at 35 weeks…
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Lisa recently responded to one of our survey questions with her heartfelt health story. Below is what she had to say. Picture this: It’s six weeks before you’re getting married, you’re about to go on tour to promote your first full album, and…
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Would you like to be featured in Stories From The Community? Check out our new opportunities for ways to participate! Mary responded to our recent question about self-care. Move it or lose it, we say. So, move it, I do. As a lifelong…
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