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One challenge many people face is living with several serious health conditions. This can have a major impact on your ability to work, time with friends and family, and it can even limit your ability to go out and enjoy the world.

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If you live with an invisible illness you know exactly how hurtful worlds can be even if they come from someone who has good intentions.

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Cookbooks are “time capsules, so we can look back and see how we chose to survive and come together collectively.” This is your chance to submit to the Health Stories Project community cookbook.

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If you or someone you care for want to spread awareness about life with schizophrenia, this is a fun, unique, and easy opportunity to get involved.  Simply complete the following short survey to learn more and find out if you qualify. Some applicants…
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We are looking for people who are interested in sharing their experiences living with eczema. You may qualify to join an awareness network.Please take my survey now

Community member, David G, sent in this story in response to one of our story requests. This is our first story about Moebius Syndrome., a rare neurological condition that researchers estimate affects 1 in 50,000 to 1 in 500,000 newborns. It can be…
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Dan “Dry Dock” Shockley is a Health Stories Project member from California who, after retiring from the military and surviving hereditary colon cancer, is the definition of a warrior. He recently responded to our Shared Experiences story request about people sharing important experiences…
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What happens when you develop a serious autoimmune condition at a young age? For young people living with Hidradenitis Suppurativa (commonly called HS), it can mean embarrassment, pain, confusion, and the frustration that comes with limited information. While the average age of onset…
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 This story was written by a community member, Cindy B. She responded to one of our story requests about life with cancer.   Two years ago, a growth in my pulmonary artery was discovered by accident.  Since then, a diagnosis of fibromuscular dysplasia and…
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MacKenzie is a Health Stories Project member from Kentucky who is most passionate about changing the way people see folks with multiple sclerosis, “They tend to focus on all the things we can’t do instead of all the things we can.” She recently responded…
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For Art, who was diagnosed with HIV in January 1989, watching the COVID-19 pandemic unfold has been reminiscent of his experience living through the AIDS epidemic that ravaged the US in the 1980s and 1990s. “I grew up in the epicenter of HIV…
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Opportunity

Meeting someone who understands what you’re going through can boost your mood, give you ideas or inspiration, and makes a huge difference when you’re feeling isolated or alone. This story template is designed to help you share about a time you’ve connected with someone about a shared health experience.

Opportunity

We are looking for people who are interested in sharing their experiences living with multiple sclerosis (MS). You may for a project that involves interviews with the media.

Dr. Pineda in a wheelchair, smiling

As concerns about the coronavirus continue to mount, one organization is reminding governments and communities not to forget about people with disabilities. World Enabled, founded in 2003, aims to build inclusive societies for people with disabilities and older persons. With COVID-19 continuing to…
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Taryn, Jessica and Jacquie portraits

Taryn J. age 26, was a natural homebody before a pandemic struck Washington state, and now staying at home is enforced by law. Jessica Cannon, age 27, commuted to Seattle by train for almost an hour to reach her job as an accountant,…
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Right now, the world is a scary and uncertain place. From disrupted treatment, lost work and wages, healthcare rationing, social isolation, and subsequent depression, the coronavirus (COVID-19) is disrupting the lives of every person in the U.S. (and the world!). These issues are…
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Taking the time to listen and care for your body is a critical life-skill. This is true for everyone, but especially when you’re living with chronic health conditions.  Sylvia of Virginia is living with lupus SLE, type 2 diabetes, rheumatoid arthritis (RA), depression,…
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Jae knows a thing or two about change. A passionate writer and volunteer in Chicago, he discovered he was living with multiple sclerosis (MS) in 2019. We would like to thank him for sharing candidly about the first stages of this life-changing diagnosis….
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Opportunity

We’re looking for people to give an inside look at life with hidradenitis suppurativa. You will have the chance to participate in a Health Stories Project blog post plus videos, speaking engagements and more through one of our partners. Health Condition: Hidradenitis Suppurativa…
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Allyson's Art Journal

This description of healing and personal growth was written by community member, Allyson L. She responded to one of our story requests. Please leave your words of encouragement and inspiration in the comments below. I’ve always been crafty. I took the basic art…
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When Health Stories Project invited readers to share their experiences with lupus, we received a lot of responses, which ranged from humorous to heartbreaking. Lupus, a long-term autoimmune disease in which the immune system goes haywire and attacks healthy tissue, affects everybody differently…
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Putting Stigma To Bed Featured

Rachel from Dallas, Texas lives with Narcolepsy and is determined to flip the script when it comes to invisible illness. She is especially concerned with fighting stigma surrounding life with narcolepsy and echoes what many with this condition say, “[there are movies where…
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“All it took was one AL Amyloidosis survivor story for me to realize that I could also survive this challenge”

 This story was written by a new community member, Tove J. She responded to one of our story requests saying she is open about surviving a rare incurable disease “because other patients have shared their stories and they gave me hope.”  Please thank her for…
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Lisa is a high school special education teacher living and working in Holmen, WI. While a job in education can be challenging in it’s own right, Lisa also lives with a painful and debilitating autoimmune condition called ankylosing spondylitis (that’s pronounced ank-kih-low-sing spon-dill-eye-tiss)….
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Beth Morton was in her mid-30s on the cusp of finishing her PhD when the chronic migraines began. At the time, she was no stranger to debilitating migraine attacks — she’d been having them a couple of times a month for two decades….
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Join Health Stories Project

Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

Tweets by HealthStories

If you are struggling with some tough emotions or feeling lonely, don't hesitate to call the Lifeline at 1-800-273-TALK (8255). We are here to listen, 24/7/365.💚

Funny photo, determined words: Fear. Uncertainty. Rage. Long-term survivors of HIV have endured much. But with the loss and the scars, has come resilience. This is not our first pandemic. We are survivors; that’s why we’ll get through this, too. Hope. Courage. Strength. #HLTSAD

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