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At Health Stories Project, empowering patients and caregivers to share their authentic health journeys is at the heart of our business. Only from understanding such a journey – which is different for every person we encounter – can we authoritatively recommend strategies to…
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Performer and multiple sclerosis advocate Brittany Quiroz is keeping it real—and empowering others. If all the world is a stage, as William Shakespeare’s Jacques asserted around 400 years ago, most of us are metaphorical bit players whose challenges and dreams don’t factor into…
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Community Insights Are Valuable Our site will never be a place to come and get every fact or the latest piece of news about any health condition. However, we will continue to share results from surveys you generously respond to. Last year, we…
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Black Health Matters Providing health solutions for the mind, body and soul. A resource for health and wellness within the African American community. Website: https://blackhealthmatters.com/ Twitter: https://twitter.com/BHMinfo Black Women’s Health A national nonprofit dedicated solely to the health & wellness of Black…
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As concerns about the coronavirus continue to mount, one organization is reminding governments and communities not to forget about people with disabilities. World Enabled, founded in 2003, aims to build inclusive societies for people with disabilities and older persons. With COVID-19 continuing to…
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When Michelle Rathman tells her personal story of how a successful public relations expert shifted her focus from representing bestselling authors to advocating for rural healthcare, the audience listens raptly. Hands always shoot up when she asks if anybody else had a medical…
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John Linnell knows how to put people at ease. When asked how he’s doing, he delivers a humorous response with impeccable timing. “If I were any better, I’d be twins,” he says, chuckling a little at his own well-worn bit. “But then I’d…
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When it comes to fighting cancer, the timing is never ideal, but sometimes it strikes at the worst possible moment. Molly MacDonald had just endured a financially devastating divorce and was about to transition to a new six-figure job that would help her…
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Todd Spurrier has logged an incredible 53,000 miles on his Ducati to raise awareness for colorectal cancer screening. He meets and photographs survivors and says , “I carry a piece of each survivor in my heart on every mile. They are my fuel.”
Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.
Patient advocate Josh Robbins is witty, fun, and super candid. He says, “My decision to disclose on social media that I was living with HIV was because I had the weight of the world telling me to do it. I felt safe enough. It was right for me.”
Before she was diagnosed with ADHD, Terry Matlen spent a lot of time trying to figure out what was wrong with her. “I felt like a failure,” she says. “I wondered how come I couldn’t do what every other woman I knew could…
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For newly diagnosed multiple myeloma patients, Peter Sennert represents hope. Peter, 57, was diagnosed with the rare cancerous blood disease 18 years ago and is still going strong. He and his wife, Mary Ellen, now devote themselves to advocating for blood cancer research…
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As a kid, Daniel Malito could only watch from the sidelines as his classmates played sports and roughhoused. When he was eight years old, Malito started getting chronic low-grade fevers and joint aches. Over the next couple of years, his family saw a…
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When you suffer from a chronic illness, it’s natural to feel negative emotions sometimes. The problem is when those emotions take over your life. Just ask Davina “Dee” Conner. After she learned she had HIV in 1997, she hit a low point. For…
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Applying for disability wasn’t an easy decision for Erica Carrasco, the migraine blogger behind Achy Smile. She’d been a go-getter her whole life, but had suffered from increasingly severe headaches as an adult that eventually derailed her career. There was nothing left to…
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Meet Marvin Marvin Anderson works as an award-winning speaker, personal development empowerment coach, author and HIV advocate. He is also the founder of The Stigmocracy Organization. which is working to diminish stigma directed toward individuals infected or affected by HIV/AIDS. We asked Marvin to…
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Alisha Bridges wasn’t always the confident young woman she is today. After being diagnosed with psoriasis as a child, she spent most of her life covering up her skin from neck to toes and hiding her condition from just about everybody. Now she’s…
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Meet Rachel Rachel Hill is a writer and advocate who has been living with Hypothyroidism since she was 16 years old. She is the creator of The Invisible Hypothyroidism, an award-winning patient advocacy blog that focuses on helping others by advocating for a…
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On December 4, 2017, the Supreme Court approved the third version of the president’s travel ban to go into effect while legal challenges continue to be heard in the lower courts. Intended to protect the U.S. from the threat of terrorism, the regulation…
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It all started with a simple itch. Jason Greenspan was watching TV, thinking about his upcoming senior prom, when he scratched himself and felt a small, hard lump in one of his testicles. “I had a gut feeling it was something,” says Greenspan,…
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We deliver new health stories each week! –> Inherited genetically, cystic fibrosis (CF) affects more than 30,000 people in the U.S. alone. In fact, about one in 25 people is a carrier of the disease. Still, many don’t know about CF or understand…
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Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.