Life with a serious health condition can be difficult. We have found that some individuals find comfort hearing from others living through similar situations. 

Our Health Stories Project community members living with deep vein thrombosis (DVT), atrial fibrillation (AFib) or pulmonary embolism (PE) have shared advice they would give to someone newly diagnosed with a condition similar to the one they’re living with.

Living with DVT, AFib or PE and want to add to the list? Take this survey.

1. Learn as much as you can. Be your own advocate and trust yourself. Research your condition and ask your provider any questions you have.

2. Seek medical care from a qualified specialist. Do not rely solely on search results. If you were not diagnosed or feel you were misdiagnosed, seek additional opinions.

3. Once diagnosed, listen to your provider. Keep up with appointments, take your medications and follow your care team’s recommendations. 

4. Join a support group. Don’t go through this alone. Find comfort by connecting online and in person with others who are living with similar conditions.

5. Take it day by day and find ways to enjoy life. Your life may change, but find ways to continue doing the things you enjoy. Get plenty of rest and give yourself grace.

Although our community living with deep vein thrombosis, atrial fibrillation or pulmonary embolism may be going through similar situations as you, the content within this blog does not constitute medical advice. Consult a physician with any questions or concerns you have about your health condition and/or treatment.

Take this survey to add to the advice!

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