Feature

At Health Stories Project, empowering patients and caregivers to share their authentic health journeys is at the heart of our business. Only from understanding such a journey – which is different for every person we encounter – can we authoritatively recommend strategies to…
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Britany Quiroz, MS Patient Advocate sitting on steps holding her cane Feature

Performer and multiple sclerosis advocate Brittany Quiroz is keeping it real—and empowering others. If all the world is a stage, as William Shakespeare’s Jacques asserted around 400 years ago, most of us are metaphorical bit players whose challenges and dreams don’t factor into…
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multiple conditions self injection Feature

Many people living with multiple illnesses don’t just manage symptoms, they also adhere to a medication schedule and may need to repeatedly adjust their overall regimen (with their doctors’ input) due to how medicines interact. Staying on top of treatments alone can have…
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Feature

Rosemary’s health concerns date back to 1984, when she was diagnosed with lupus and interstitial lung disease. In the decades since, she has been diagnosed with several other conditions, making each year more complex and challenging than the last. Looking back on her…
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Osteoporosis

Cynthia first broke one of her bones when she was eight years old. Since then, every five years or so, she has broken another. Before that count reached a dozen, she worried that something physical was contributing to the pattern — and her…
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Brian's Hashimoto's disease

Brian’s difficult and frustrating path to multiple diagnoses, including Hashimoto’s disease (chronic lymphocytic thyroiditis), is an apt reminder this Thyroid Awareness Month that the small gland plays a huge and vital role. When the thyroid functions incorrectly, it may stymie both patients and…
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2021

We each experienced 2021 differently—for some, this was the year they accomplished things they had been working towards for months, for others, diseases progressed and loved ones were lost. We recently asked our community to reflect on 2021 and all of the highs…
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hot flashes

The severity of hot flashes caused by menopause varies among women. Some women sweat through their clothing, while other may feel a slight rise in temperature. We recently asked our community how the symptoms of hot flashes has affected their lives the vast…
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mantras

The holidays around this time of year tend to be a joyous time, but for many this may be a time of mourning, triggering thoughts and unpleasant feelings. We’re here to remind you that it’s okay to not be okay, today and any…
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Karen’s health conditions have not only led to hospitalizations and life-threatening circumstances, but have acted as a wedge between her and her daughter over the years. Feeling alone and that she had nowhere to turn for support, Karen shared her experience and feelings…
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psoriasis

Diane was diagnosed with psoriasis in 1963, a condition no one had ever seen in the town she was growing up in. She experienced situations she doesn’t want others to live through, so she now advocates for others living with the same conditions…
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fibromyalgia

Like so many people living with conditions that don’t present with obvious symptoms, Carol has repeatedly experienced others’ insensitivity. Here Carol shares some of these comments and offers advice to those who find themselves facing similar circumstances. With the year coming to a…
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Three of Sarah's Children

Several years ago, Sarah found herself in an extremely difficult situation involving family bonds and financial challenges. The life of one of her children was at stake, yet so was the livelihood of herself and two of her other children. No one should…
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Pulmonary arterial hypertension (PAH) is a rare condition with only 500-1000 new cases being diagnosed each year in the U.S. Symptoms of PAH may include shortness of breath (dyspnea) especially during exercise, chest pain and fainting episodes. For the past few weeks, we…
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Daniel Is Anal Cancer-Free in 2021

Daniel had already lived with HIV for many years when he was diagnosed with anal cancer in 2015. Given his existing challenges, he believed he could persevere but that didn’t make his reality any easier. Now cancer-free, when looking back at the experience…
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Misty tirelessly advocated for herself until she received a referral to a neurologist that would ultimately lead to finally getting answers she had been searching for. Here she shares her long journey searching for someone to look into her symptoms, her diagnoses of…
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Cowden syndrome

Ciara was diagnosed with Cowden syndrome, a rare medical condition, not too long after getting a thyroid removed, surviving cancer and experiencing heart failure. Loneliness crept in as she managed her multiple conditions. Here she shares her health journey and expresses gratitude towards…
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rheumatoid arthritis sleep apnea lung cancer

Lucy has experienced health issues since she was a teenager. These have carried out throughout her life and into adulthood. Here she shares which symptoms led to her multiple diagnoses, what it’s like living with three distinct conditions and the advice she would…
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Sylvia Recovered from an Unexpectedly Difficult 2003 Hysterectomy

Almost 20 years ago, Sylvia’s “routine” doctor visit quickly became an emergency that would require months of recuperation — and alter the course of her life. She recounts the experience here and offers some advice for facing adversity. Identifying the Problem I walked…
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Angela B. is most passionate about overcoming the stigma associated with bipolar II disorder and all other mental health diseases.  She puts forth effort by educating and speaking out about her own struggles with these conditions. Here Angela shares who and what have…
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multiple sclerosis and melanoma

Kelly Kinard has been through it all. She has experienced symptoms of multiple sclerosis (MS) since 1992, supported her former husband when he was diagnosed with MS in 2003 and has been battling melanoma since 2010. Here she shares her experience with the…
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heart failure

Heart failure can happen to anyone. In fact, almost 6 million Americans are living with this chronic condition and more than 870,000 people are diagnosed with it each year. Despite its common nature, many people don’t understand the impact it can have on…
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SJIA

In January 2012, Kristen’s youngest of three children, Rylan, suddenly became very sick. Their trying path to a diagnosis for the then-one-year-old was just the beginning of a new and continuously challenging experience — which Rylan and his family have persevered as a…
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Jo, Who Lives with Multiple Conditions, Focuses on Quality of Life

Fifty-plus years of significant health challenges might break anyone’s spirit. Jo, however, emphasizes the practical and positive despite the adversity of a lifetime of managing a host of issues and conditions including asthma, chronic obstructive pulmonary disease (COPD), diabetes and psoriasis. Jo’s story…
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