When most people find out someone is living with a rare health condition, their first thought is just how hard it must be for that person to carry on every day, facing their diagnosis. But for many who have a rare condition, the…
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Caring for someone with any chronic health condition is an experience that is hard to relate to unless you’re going through it. Resources and support for caregivers are often hard to come by, friends and family don’t often understand, and treatment can be…
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