Lisa and Matt are Health Stories Project members from Austin, Texas that believe their community made the difference when Matt had an unexpected hospital stay related to colon cancer. They allowed us to visit them (socially distanced!) to capture their story. Please join…
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Shelli Martineau
These Organizations Are Working Towards Racial Equality in Healthcare
- June 25th, 2020
- Shelli Martineau
- Patient Advocacy
Black Health Matters Providing health solutions for the mind, body and soul. A resource for health and wellness within the African American community. Website: https://blackhealthmatters.com/ Twitter: https://twitter.com/BHMinfo Black Women’s Health A national nonprofit dedicated solely to the health & wellness of Black…
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Hidradenitis Suppurativa: What was diagnosis at a young age like for you?
- May 19th, 2020
- Shelli Martineau
- Living with Chronic Illness
What happens when you develop a serious autoimmune condition at a young age? For young people living with Hidradenitis Suppurativa (commonly called HS), it can mean embarrassment, pain, confusion, and the frustration that comes with limited information. While the average age of onset…
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9 Messages of Hope and Caring from People who are #HighRiskCovid19
- April 3rd, 2020
- Shelli Martineau
- Living with Chronic Illness
Right now, the world is a scary and uncertain place. From disrupted treatment, lost work and wages, healthcare rationing, social isolation, and subsequent depression, the coronavirus (COVID-19) is disrupting the lives of every person in the U.S. (and the world!). These issues are…
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The Asthma Problem Is Far From Solved
- January 10th, 2020
- Shelli Martineau
- Living with Chronic Illness
I remember vividly when a close family member was hit by an asthma attack that was exacerbated by dust and mold in a large arena filled with horses. When we bought the tickets, we didn’t think about how a simple show could lead…
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13 insights for family and caregivers from people living with multiple myeloma
- December 16th, 2019
- Shelli Martineau
- Family and Caregiving
Multiple myeloma survivor Sandy, says that “fighting this alone without support is a hard, rough road.” This is true not only for survivors but for family and caregivers as well. If someone you love is dealing with cancer you may feel overwhelmed, helpless,…
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5 things you should know about life with pseudobulbar affect
- December 12th, 2019
- Shelli Martineau
- Living with Chronic Illness
“I have fits of uncontrollable laughter and it’s not fun or funny.” That’s how Jennifer explains life with pseudobulbar affect (PBA). Wendy has the same condition and describes her experiences: “It’s frustrating because you have no control over [laughing or crying]. They occur…
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Bipolar: More Than Just a Mood Swing
- October 29th, 2019
- Shelli Martineau
- Stories From The Community
It wasn’t that long ago that bipolar disorder was believed to be another condition like depression or schizophrenia. “Manic Depression” was first recognized in 1854 by Jules Falret, but it wasn’t until the early 1970s that it was recognized by the U.S. Congress…
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Why We Ride: How the Young Survival Coalition’s Tour de Pink Brings People Together
- October 24th, 2019
- Shelli Martineau
- Finding Community
Recently, friends of Health Stories Project had the chance to ride along with members of an organization called Young Survival Coalition at their annual Tour De Pink charity bike ride. The Young Survival Coalition (YSC) exists to ensure that no young person faces…
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Share Your Story with Our Video App
- January 21st, 2020
- Shelli Martineau
- Opportunity
If you have an iOS device (e.g., iPhone, iPad), you can record your video health story using our Health Stories Project video app.