There are more than 7,000 rare diseases registered with the National Organization for Rare Disorders and while each is unique, there are many commonalities that unite rare condition patients, families, caregivers and supporters. In the spirit of raising awareness of rare conditions, we…
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Multiple myeloma chemo day

Anyone familiar with the rare blood cancer, multiple myeloma knows that it’s defined by its high rate of recurrence, or relapse, following remission. While finally getting the clean scans or blood tests that indicate remission can seem like the finish line for most…
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Pulmonary Arterial Hypertension—or high blood pressure in the lung arteries—can be dangerous if not properly treated. It often makes daily activities, like exercising, nearly impossible. Medical professionals are learning more about this rare condition every day, and your PAH story can help raise…
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Everyone who lives with pain has an important story to share. We are looking for people who either have a current opioid prescription and are concerned about overdose or those who have witnessed or experienced a prescription opioid overdose. You may even qualify for a special project that includes travel.

If you have experienced a heart attack, stroke and/or high cholesterol, you may qualify for a special volunteer project that includes travel. Take our survey to learn more and find out if you qualify.

Colorectal cancer is the 2nd leading cause of cancer death among men and women combined. Sadly, 60% of colorectal cancer deaths could be prevented with screening. If you have ever been screened for colon cancer (no matter the result) you may qualify for a special project!

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Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.

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