Share Your Hidradenitis Suppurativa (Acne Inversa) Story

What happens when you develop a serious autoimmune condition at a young age? For young people living with Hidradenitis Suppurativa (commonly called HS), it can mean embarrassment, pain, confusion, and the frustration that comes with limited information. While the average age of onset…
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Taryn J. age 26, was a natural homebody before a pandemic struck Washington state, and now staying at home is enforced by law. Jessica Cannon, age 27, commuted to Seattle by train for almost an hour to reach her job as an accountant,…
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Hidradenitis suppurativa (HS) may not be a household name, but it affects millions of people. Also known as acne inversa, HS usually begins as pimple-like bumps on the skin. If the chronic condition worsens, the bumps can grow deep into the skin, becoming…
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It’s easier to talk about physical scars than emotional ones, but life with a chronic illness like Hidradenitis supporativa (HS) isn’t just about physical pain. Hidradenitis supporativa can leave unseen wounds that are just as serious and bothersome as their physical counterparts. In fact,…
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“So, I have this weird thing…” That’s how Jaime starts explaining her rare health condition to new people. She then goes on to tell them, “It starts with bumps in the armpit that hurt immensely and swell up like cysts. Then they burst…
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Like many teenagers, Jordyn struggled with acne starting around the time she hit puberty. She didn’t think of it as anything out of the ordinary, even as it worsened over time. As Jordyn entered her late teens, things began to escalate.  During her…
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