Rosemary’s health concerns date back to 1984, when she was diagnosed with lupus and interstitial lung disease. In the decades since, she has been diagnosed with several other conditions, making each year more complex and challenging than the last. Looking back on her…
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Robin’s declining strength and stamina at work served as an alarm that something was wrong. It took three years, however, to identify what was causing these feelings of weakness and exhaustion. Here Robin shares the perspective gained from this long process — and…
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For many years, Megan’s multiple physical and mental health conditions have proven difficult to treat with standard medications. As a result, she has found alternate ways to find relief and peace. Here she shares some of what she has experienced and how she’s…
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Lindsey kept her narcolepsy diagnosis to herself, family and close friends, until September 2019 when she decided to finally post about her health experiences on her social media profiles. Here she shares how opening up about her diagnosis has helped her accept the…
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Diane was diagnosed with psoriasis in 1963, a condition no one had ever seen in the town she was growing up in. She experienced situations she doesn’t want others to live through, so she now advocates for others living with the same conditions…
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Like so many people living with conditions that don’t present with obvious symptoms, Carol has repeatedly experienced others’ insensitivity. Here Carol shares some of these comments and offers advice to those who find themselves facing similar circumstances. With the year coming to a…
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Community member, Lanie M, sent in this story in response to one of our prompts. What was the best advice you’ve ever received? Leave it in the comments below! “Never let your challenges make you bitter.” This is something my mom talked to…
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Nikki Albert has coped with chronic pain since she was a kid, when joint hypermobility syndrome left her with aching knees and insomnia at just eight years old. As a young adult, she was diagnosed with fibromyalgia and migraines. Now in her early…
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Not even the rudest of trolls can stop Tinu Abayomi-Paul a patient activist who lives with cancer and multiple disabilities. She spends her time creating helpful resources for others and speaking out about chronic illness, civic duty, and life as a black woman.
We wanted to know how the “opioid crisis” was effecting people in our community, so we sent out a call looking for people living with chronic pain who are taking or have been prescribed opioid pain treatment who wanted to share their thoughts and opinions.
Fibromyalgia is a very common, chronic condition that causes widespread muscle and joint pain, tenderness, fatigue, depression, as well as many other symptoms. It’s often accompanied by a condition that sufferers refer to as “fibro fog,” a constant state of fatigue that results…
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Health Stories Project was created to give people opportunities to share their personal health experiences and to learn from the experiences of others.