At Health Stories Project, we work hard to bring you inspiring and educational stories about others but our real goal is to give you ways to share health experiences.
Everyone has a story and every story can make a difference for someone. That’s what we believe and that’s what why we keep adding new ways for people to share.
We interview patients and caregivers for our blog, feature videos made using our mobile app, offer online surveys and virtual focus groups, and even connect people with volunteer programs for specific health conditions.
If you’re looking for ways to get involved and use your health story to help others, we can help you do that.
Need a reason to share? Here are four:
1. Be someone’s lifeline.
Remember when you first got diagnosed and the uncertainty you felt? Wouldn’t it have been nice to hear about someone else’s experiences and even connect with them? You can be that person for someone else. That’s a big deal.
2. Own your health story.
Illnesses and injury can change us, but that doesn’t mean they define us. Telling your story has power – it can help you make sense of what’s happened and use difficult experiences to accomplish something good.
3. Don’t go it alone.
Those awful symptoms? All those tests? Those blank looks when you tried to explain stuff to family and friends? You are not the only person to go through these things and it can be really, really helpful to not just know that, but to actually feel like it. Sharing is the first step towards connecting with people who get it.
4. Be the change you want to see.
Doctors can to do a better job of listening. Affordable medication seems like a pretty reasonable expectation. We all know that our health care system is far from perfect. Very far in some cases. The best way to create real change in your lifetime is to speak out and make your voice heard.
Getting started is easy: just sign up to join and we’ll let you know about new opportunities to share that match your interests and background.
You can also check out our list of current opportunities to see if there are any that you or someone you know may be interested in.
Join now and help us get the word out – when more people share health experiences, we get better resources, better treatments, and better communities.
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It is just awful dealing with any neurological disease and it’s effects on the human body.
It sounds like there’s a story there, Alfred. Thanks for speaking up and hopefully sharing your difficult experiences will help others who may be facing the same.