We say it often: sharing your story makes a difference, but don’t take my word for it, this comic by Tatiana Gill was inspired by comments and stories from Health Stories Project community members.
5 Reasons to share from patient advocates:
1. “My greatest support would have to be others in the cancer community….even the people closest to you sometimes may not be able to relate and it can be difficult, but that’s why my greatest support was just others who knew, who would just know exactly how I would feel” – Alison G, Non-Hodgkin’s Lymphoma
2. “For the first time in 22 years, I met other people dealing with the disease. [The conference] gave me power. It let me know that I wasn’t alone.” – Alisha B, Psoriais
3. “So many individuals that are diagnosed can’t get past the stigma and then stigmatize themselves, but our diagnosis should not stop us from living a full life just like anybody else. I want to everyone to know, especially women diagnosed with HIV, that life is not over for any of us. I want them to know that as long as we change how we see ourselves we will feel better about who we are.” – Davina “Dee” Conner, HIV
4. “After I got my diagnosis, I found this website called Narcolepsy Network. And I met a lot of people on line with narcolepsy. We talked about our experiences that way. It was a huge invaluable resource for me at the time.” – Devon B., Narcolepsy
5. “I don’t mind talking openly about depression. I want to encourage people to share their stories. You’re not alone.” – Jennifer, Cancer and Depression
You can share your experiences and help others with Health Stories Project!
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